Category: Latest News

March 2024 Newsletter

In this Issue… Jeff Weighs In Advocacy and Legal Update · WE NEED YOU! Register for the Hemophilia Alliance Hill Day in April Washington Update · Congress Continues to Deliberate on 2024 Government Funding · President Biden Releases 2025 Budget · HHS/CMS Responds to Cyberattack on Change Healthcare Member and Community Relations Update · Hemophilia […]

Jeff Weighs In, March 2024

Jeff Weighs In by Jeff Blake, President and CEO Also in this Issue… Advocacy and Legal Update · WE NEED YOU! Register for the Hemophilia Alliance Hill Day in April Washington Update · Congress Continues to Deliberate on 2024 Government Funding · President Biden Releases 2025 Budget · HHS/CMS Responds to Cyberattack on Change Healthcare […]

Advocacy Update, March 2024

Advocacy and Legal Update by Ellen Riker and Johanna Gray, Artemis Policy Group WE NEED YOU! Register for the Hemophilia Alliance Hill Day in April Please join us for the 2024 Hemophilia Alliance Spring Meeting and Hill Day on April 15 – 18 in Washington, D.C. This year we are combining the spring meeting which […]

Washington Update, March 2024

Washington Update Congress Continues to Deliberate on 2024 Government Funding On March 8, Congress passed the first of two funding bills to extend federal funding for Departments and Agencies, including the FDA. This bill included a very small number of “riders” (popular authorizing policies outside the funding bills) in healthcare. Of interest to HTCs, is […]

MCR Update, March 2024

  Member and Community Relations Team Update Hemophilia Alliance 3rd Annual Pharmacist Conference – January 25-26, 2024 by Resham Sahijram, PharmD, Hemophilia of Georgia and Member of the CE Pharmacists Committee Over the course of 2 days, pharmacists gathered from different treatment centers across the US to network and further their education in Charleston, South […]

Alliance Update, March 2024

Marketing and Operations Team Update Alliance Marketing and Operations Team Tours an HTC! by Marketing & Operations Team Our mighty team of 4 is often ‘the men and women behind the curtain’ as we plan meetings, keep the website running, and burry our noses in data, but last month we got to stretch our legs […]

Notes from the Community, March 2024

Notes from the Community Help Share NBDF and NYU Survey of Bleeding Disorders Community! Since it announced its new name last fall, the National Bleeding Disorders Foundation (NBDF) has been working with a team of graduate students at the New York University Wagner School of Public Service on a project supporting NBDF’s rebranding to expand […]

February 2024 Newsletter

In this Issue… Jeff Weighs In Alliance Update · How will you be spending World Hemophilia Day this April 17th, 2024? · Upcoming Meeting Schedules Advocacy and Legal Team Update · Senators Release Draft Legislation to Reform the 340B Program: the SUSTAIN 340B Act Member and Community Relations Update · Gene Therapy – Hemophilia Alliance […]

Jeff Weighs In, February 2024

Jeff Weighs In by Jeff Blake, President and CEO Your browser does not support HTML video. Also in this Issue… Alliance Update · How will you be spending World Hemophilia Day this April 17th, 2024? · Upcoming Meeting Schedules Advocacy and Legal Update · Senators Release Draft Legislation to Reform the 340B Program: the SUSTAIN […]