by Ellen Riker and Johanna Gray, Artemis Policy Group

WE NEED YOU! Register for the Hemophilia Alliance Hill Day in April

Please join us for the 2024 Hemophilia Alliance Spring Meeting and Hill Day on April 15 – 18 in Washington, D.C. This year we are combining the spring meeting which will start with a reception on Monday evening, April 15, followed by an educational meeting on April 16 – 17. The advocacy briefing will kick off the afternoon of April 17 and we will head to the Hill on April 18. All Alliance members and their patients are invited to join us to advocate for the bleeding disorders community.

Why Attend: We will be educating Senators and Representatives and their staff members about bleeding disorders, HTCs, and the importance of the 340B Program to our community. We need your help to ensure policymakers understand our issues since there are multiple 340B “reform” bills floating around. This year we will also be discussing access challenges, such as copay accumulator adjustors and the alternative funding model and how they impact the bleeding disorders community.

Who: We hope that many Alliance members will participate. We encourage you to also recruit a patient from your center to join you. (Patients’ airfare, accommodations and ground transportation in DC will be paid by the Hemophilia Alliance.)

Next Steps/Questions: Please click here to register to participate. The deadline for registration is March 27, 2024. Please contact Johanna Gray at jgray@artemispolicygroup.com or 703-304-8111 for more information.