- How will you be spending World Hemophilia Day this April 17th, 2024?
- Upcoming Meetings
by Marketing & Operations Team
The Alliance is inviting all our members to register for the Hemophilia Alliance 2024 Spring Member Meeting & Hill Day that will take place on April 15th – 18th in Washington DC. We are excited that this year’s Hill Day falls the day after World Hemophilia Day.
We encourage Alliance members to invite patients to join us on Capitol Hill! More patients equal more voices to help educate Senators and Representatives about bleeding disorders, HTCs, and the importance of the 340B Program to our community. Please note that patients’ airfare, and accommodations in D.C. will be paid for by the Hemophilia Alliance.
Additionally, on April 17th we are excited to be throwing a very special celebration for Joe Pugliese. For over 45 years, Joe diligently served the bleeding disorders community, and this will be a great opportunity to show our appreciation for all of Joe’s hard work and to wish him the best in his retirement.
Please click here to register for the Spring Member Meeting & Hill Day because this one-of-a-kind 3-in-1 event will not be something you want to miss!
| MEETING | DATE |
|---|---|
| Linda Gammage Social Worker CE Conference | February 28 – March 1, 2024 |
| New HTC Staff Orientation | March 25 – 27, 2024 |
| Spring Members Meeting and Hill Day [REGISTER NOW] | April 15 – 18, 2024 |
| Physical Therapists CE Conference [REGISTER NOW] | May 15 – 17, 2024 |
| Nurses CE Conference [SAVE THE DATE] | June 10 – 12, 2024 |
| Fall Members Meeting | October 9 – 11, 2024 |
| Physicians and Business Administrators Meeting | November 14 – 17, 2024 |
Also in this Issue…
Advocacy and Legal Update
· Senators Release Draft Legislation to Reform the 340B Program: the SUSTAIN 340B Act
Member and Community Relations Update
· Gene Therapy – Hemophilia Alliance Network Services (HANS) Opportunity
Notes from the Community
· 4th Annual HTC Unite for Bleeding Disorders National Walk Challenge Launch and Registration Promotion!!