Also in this Issue…
Alliance Update
· How will you be spending World Hemophilia Day this April 17th, 2024?
· Upcoming Meeting Schedules
Advocacy and Legal Update
· Senators Release Draft Legislation to Reform the 340B Program: the SUSTAIN 340B Act
Member and Community Relations Update
· Gene Therapy – Hemophilia Alliance Network Services (HANS) Opportunity
Notes from the Community
· 4th Annual HTC Unite for Bleeding Disorders National Walk Challenge Launch and Registration Promotion!!
We work for you! Please don’t hesitate to contact any of us with any questions or concerns:
| Name | Phone | |
|---|---|---|
| Jeff Blake | jeff@hemoalliance.org | 317-657-5913 |
| Jennifer Borrillo, MSW, LCSW, MBA | borrillo@hemoalliance.org | 504-376-5282 |
| Jeff Amond | amond@hemoalliance.org | 608-206-3132 |
| Jennifer Anders | jennifer@hemoalliance.org | 954-218-8509 |
| Angela Blue, MBA | angela@hemoalliance.org | 651-308-3902 |
| Karen Bowe-Hause | karen@hemoalliance.org | 717-571-0266 |
| Zack Duffy | zack@hemoalliance.org | 503-804-2581 |
| Michael B. Glomb | MGlomb@ftlf.com | 202-466-8960 |
| Johanna Gray, MPA | jgray@artemispolicygroup.com | 703-304-8111 |
| Kiet Huynh | kiet@hemoalliance.org | 917-362-1382 |
| Elizabeth Karan | elizabeth@karanlegalgroup.com | 612-202-3240 |
| Kollet Koulianos, MBA | kollet@hemoalliance.org | 309-397-8431 |
| Roland P. Lamy, Jr. | roland@hemoalliance.org | 603-491-0853 |
| Dr. George L. Oestreich, Pharm.D., MPA | george@gloetal.com | 573-230-7075 |
| Theresa Parker | theresa@hemoalliance.org | 727-688-2568 |
| Mark Plencner | mark@hemoalliance.org | 701-318-2910 |
| Ellen Riker | eriker@artemispolicygroup.com | 202-257-6670 |
