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Hemo Alliance Newsletters

Alliance Update, March 2024

Marketing and Operations Team Update
  • Alliance Marketing and Operations Team Tours an HTC!
  • by Marketing & Operations Team

    Our mighty team of 4 is often ‘the men and women behind the curtain’ as we plan meetings, keep the website running, and burry our noses in data, but last month we got to stretch our legs and spend some time touring one of our member HTCs at Arnold Palmer Hospital for Children in Orlando, FL. Getting to see first-hand all of the hard work and dedication that goes into running an HTC was both exciting and eye-opening. Meeting with the team of nurses, providers, physical therapist, social worker, and program coordinator, we got to see the comprehensive care model in action, and we enjoyed discussing some of the new changes and challenges facing HTCs today.


    [Click on image for larger version]

    As a special treat, the Arnold Palmer team gave us a demonstration of a new infusion education tool that they have developed called VainSim (Venous Access Infusion Simulator). VainSim allows patients to practice self-administering their medication safely and confidently. We were able to test this tool and we can’t wait to see the impact that this is going to have on the bleeding disorders community and beyond. While we love getting to see everyone at our member meetings, experiences like this remind us why WE WORK FOR YOU!


  • Upcoming Meetings
  • MEETING DATE
    New HTC Staff Orientation [REGISTRATION CLOSED] March 25 – 27, 2024
    Spring Members Meeting and Hill Day [REGISTER NOW] April 15 – 18, 2024
    Physical Therapists CE Conference [ONLY VIRTUAL IS STILL AVAILABLE] May 15 – 17, 2024
    Nurses CE Conference [REGISTER NOW] June 10 – 12, 2024
    Fall Members Meeting [SAVE THE DATE] October 9 – 11, 2024
    Physicians and Business Administrators Meeting [SAVE THE DATE] November 14 – 17, 2024

Also in this Issue…

Jeff Weighs In

Advocacy and Legal Update
· WE NEED YOU! Register for the Hemophilia Alliance Hill Day in April

Washington Update
· Congress Continues to Deliberate on 2024 Government Funding
· President Biden Releases 2025 Budget
· HHS/CMS Responds to Cyberattack on Change Healthcare

Member and Community Relations Update
· Hemophilia Alliance 3rd Annual Pharmacist Conference – January 25-26, 2024

Notes from the Community
· Help Share NBDF and NYU Survey of Bleeding Disorders Community!
· Partners Physician Academy – Applications Are Open Through April 19, 2024

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

NameEmailPhone
Jeff Blakejeff@hemoalliance.org317-657-5913
Jennifer Borrillo, MSW, LCSW, MBAborrillo@hemoalliance.org504-376-5282
Jeff Amondamond@hemoalliance.org608-206-3132
Jennifer Andersjennifer@hemoalliance.org954-218-8509
Angela Blue, MBAangela@hemoalliance.org651-308-3902
Karen Bowe-Hausekaren@hemoalliance.org717-571-0266
Zack Duffyzack@hemoalliance.org503-804-2581
Michael B. GlombMGlomb@ftlf.com202-466-8960
Johanna Gray, MPAjgray@artemispolicygroup.com703-304-8111
Kiet Huynhkiet@hemoalliance.org917-362-1382
Elizabeth Karanelizabeth@karanlegalgroup.com612-202-3240
Kollet Koulianos, MBAkollet@hemoalliance.org309-397-8431
Roland P. Lamy, Jr.roland@hemoalliance.org603-491-0853
Dr. George L. Oestreich, Pharm.D., MPAgeorge@gloetal.com573-230-7075
Theresa Parkertheresa@hemoalliance.org727-688-2568
Mark Plencnermark@hemoalliance.org701-318-2910
Ellen Rikereriker@artemispolicygroup.com202-257-6670