Legal Update, August 2023
Legal Update Detrimental Impact of Medicaid Unwinding by Elizabeth “Issie” Karan, Hemophilia Alliance Legal Counsel As a reminder, as part of the COVID-19 public health emergency (PHE), state Medicaid programs were not allowed to conduct the typical, annual re-determination process for beneficiaries (i.e., state Medicaid programs could not remove anyone from their rolls). Now and […]
Notes from the Community, August 2023
Notes from the Community Calling All Pharmacists – Do You Have Your Global Location Number? by Michael Fusaro, Director of Regulatory Compliance, The Alliance Pharmacy The Alliance Pharmacy is working with The Hemophilia Alliance to collect Global Location Numbers (GLN) for each member organization. We are looking to ensure that there is no disruption to […]
Payer Update, August 2023
Payer Update Commercial Gene Therapy Options/Disrupters by Member & Community Relations Team It has been a very busy and interesting year in the Payer space. With the recent approval of gene therapies for Hemophilia A and B and a pipeline with several other novel therapies, we are seeing new market entrants offering networking and contracting […]
Alliance Update, August 2023
Alliance Update Hemophilia Alliance Crossword and Event Reminders by Marketing & Operations Team Summer is winding down, kids are going back to school, and in the blink of an eye, the end of the year will be here. Don’t panic!
July 2023 Newsletter
In this Issue… Notes from Joe · Gene Therapy is Here, Now What? Notes from the Community · First Hemophilia Patient to Receive Gene Therapy Outside Clinical Trials Alliance Update · Gene Therapy Update Webinar · Alliance Member Needs Assessment · Order Your Printed Product Guide NOW! Payer Update · Hemophilia Alliance Welcomes Kollet Koulianos […]
Alliance Update, July 2023
Alliance Update Gene Therapy Update Webinar by Marketing & Operations Team The Need Assessment highlighted that our small and independent centers have more specific needs for services and that expectations were not always met. BUT we received helpful suggestions that will help us support you! Assistance in educating hospital leadership on the importance of HTC […]
Payer Update, July 2023
Payer Update Hemophilia Alliance Welcomes Kollet Koulianos by Jeff Blake, Senior Vice President Member & Community Relations Because states do not have authority over ERISA plans, federal work is also being done in parallel to the state efforts. H.R. 830 The HELP Copays Act has been introduced by Representative Buddy Carter (R-GA) and currently has […]
Notes from Joe, July 2023
Notes from Joe Gene Therapy is Here, Now What? by Joe Pugliese, President and CEO Since its inception in 1999, the Hemophilia Alliance has seen significant growth in the research and development of novel therapies for the treatment of patients with hemophilia, von Willebrand disease, and other related bleeding disorders. The first infusion of an […]
Notes from the Community, July 2023
Notes from the Community First Hemophilia Patient to Receive Gene Therapy Outside Clinical Trials by Hemophilia Outreach Center – Green Bay, WI In a recent press release, the Hemophilia Outreach Center of Green Bay, Wisconsin announced that a WI resident is the first ever hemophilia B patient to receive gene therapy since FDA approval of […]
Washington Update, July 2023
Advocacy Update Washington, DC’s HOT July by Artemis Policy Group, Hemophilia Alliance Advocacy Consultants Congress has returned from its July 4th Recess with a full plate for the remainder of the month. In healthcare, bills on PBMs and pandemic-related issues seem to have the greatest chance of moving forward but the House and Senate Committees […]