by Marketing & Operations Team

On July 13th, our President & CEO, Joe Pugliese led a webinar discussion on new Gene Therapy products that recently came to the market. We had a great turnout. Some of the highlights and objectives of the webinar were to review the Hub and Spoke model, review contract highlights, provide business comparisons between Gene Therapy Factor IX vs Factor VIII deficiency, and review purchasing through The Alliance Pharmacy.

The webinar presentation and recording are now available on our website in the Document Portal section. You would need to login to access them.

• For a copy of the PowerPoint presentation, click here.
• For a copy of the recording, click here.
• If you do not have a login, click here to register.

by Marketing & Operations Team

In June we successfully conducted a Needs Assessment of our Members and were very appreciative of those who participated and provided valuable honest feedback. With 84 responses from 62 different HTCs, we had 50:50 representation from small HTCs and medium/large HTCs with most of the respondents in an administrative or program manager/director role.

By a significant margin, the top utilized and most useful services were Training/Education,340B Support, Payer Relations, Group Purchasing, and Legal and Compliance. In addition to finding ways to increase utilization of other services, we want to highlight that the Hemophilia Alliance is a Group Purchasing Organization to be utilized by all our members. Some of the lesser utilized services still add value but just appear to not be as applicable to all members and/or roles at HTCs. Services were also ranked by their ability to make HTCs successful, and we were super excited to see that many of the smaller HTCs gave a shout out to the Growth Initiative as a contributor to their success!

The Need Assessment highlighted that our small and independent centers have more specific needs for services and that expectations were not always met. BUT we received helpful suggestions that will help us support you!

• Assistance in educating hospital leadership on the importance of HTC sustainability and growth — Do you want us to attend meetings? Is this marketing materials, reports, etc.?
• Administrator Meeting — FYI New Meeting this year November 2023
• Payer Negotiation Training — Breakout Sessions at future Meetings?
• Gene Therapy — Payer Services & General Discussions

These suggested service enhancements closely aligned with the top concerns from the HTCs, which predominately included 340B status, insurance issues/frequent changes, and staff turnover. These concerns are our concerns, and we will continue to review and analyze responses to come up with new and creative ways to meet our members’ needs.

Please don’t forget to register for the Fall Member Meeting and check out the NEW Physicians & Business Administrators Meeting. We encourage Business Administrators to bring a Physician from their HTC!

by Marketing & Operations Team

Have you already submitted your order for a printed copy of the newest edition of the Product Guide? If not, order it NOW!