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Hemo Alliance Newsletters

Alliance Update, August 2023

Alliance Update

Hemophilia Alliance Crossword and Event Reminders
by Marketing & Operations Team

Summer is winding down, kids are going back to school, and in the blink of an eye, the end of the year will be here. Don’t panic!

The Hemophilia Alliance wants everyone to pull up a chair with their favorite tea, coffee, beverage, etc. and enjoy this newsletter with a fun crossword puzzle to brush up on your Hemophilia knowledge (click here for answers). We also want to remind you all of some of our awesome meetings on the horizon that will educate and reenergize you.

The Fall Member Meeting 10/08 – 10/10 in San Antonio, TX is rapidly approaching and we have a packed agenda with guest speakers, interactive breakout sessions, and a wonderful networking dinner, so if you have not registered yet, take this opportunity and mark your calendars now.

Additionally, if you or someone you know at your HTC is a Physician or Business Administrators then we WANT YOU! Get ready to pack your bags for Redondo Beach, CA on 11/10 – 11/12 for this unique Physicians & Business Administrators Meeting. Business Administrators grab your docs and take advantage of this educational opportunity in sunny California, with a specially designed agenda for your needs. Register now and look out for more information.

Also in this Issue…

Notes from Joe
· Coming Together

Washington Update
· Congress Seeks Input on 340B Policies and Drug Shortages

Legal Update
· Detrimental Impact of Medicaid Unwinding

Notes from the Community
· HTC Challenge & Unite for Bleeding Disorders Walk program update
· Linda Gammage Social Worker Conference Planning Committee Update
· Hemophilia Alliance Travel Fund Supports Participation in World Federation of Hemophilia Events
· Global Hemophilia Report Podcast on Telemedicine

Payer Update
· Commercial Gene Therapy Options/Disrupters

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

NameEmailPhone
Jeff Blakejeff@hemoalliance.org317-657-5913
Jennifer Borrillo, MSW, LCSW, MBAborrillo@hemoalliance.org504-376-5282
Jeff Amondamond@hemoalliance.org608-206-3132
Jennifer Andersjennifer@hemoalliance.org954-218-8509
Angela Blue, MBAangela@hemoalliance.org651-308-3902
Karen Bowe-Hausekaren@hemoalliance.org717-571-0266
Zack Duffyzack@hemoalliance.org503-804-2581
Michael B. GlombMGlomb@ftlf.com202-466-8960
Johanna Gray, MPAjgray@artemispolicygroup.com703-304-8111
Kiet Huynhkiet@hemoalliance.org917-362-1382
Elizabeth Karanelizabeth@karanlegalgroup.com612-202-3240
Kollet Koulianos, MBAkollet@hemoalliance.org309-397-8431
Roland P. Lamy, Jr.roland@hemoalliance.org603-491-0853
Dr. George L. Oestreich, Pharm.D., MPAgeorge@gloetal.com573-230-7075
Theresa Parkertheresa@hemoalliance.org727-688-2568
Mark Plencnermark@hemoalliance.org701-318-2910
Ellen Rikereriker@artemispolicygroup.com202-257-6670