Washington Update, February 2024
Advocacy and Legal Update Senators Release Draft Legislation to Reform the 340B Program: the SUSTAIN 340B Act by Elizabeth “Issie” Karan, Legal Counsel and Artemis Policy Group Earlier this month a group of bipartisan Senators released draft legislation focused on reforming the 340B Discount Drug Pricing Program. The Senators are seeking feedback on the legislative […]
MCR Update, February 2024
Member and Community Relations Update Gene Therapy – Hemophilia Alliance Network Services (HANS) Opportunity by Zack Duffy, Director MCR and Roland Lamy, VP Payer We are excited to announce that HANS has negotiated two national contracts for gene therapy ensuring HANS members can be reimbursed for gene therapy infusions. The contracts are with Emerging […]
Notes from the Community, February 2024
Notes from the Community 4th Annual HTC Unite for Bleeding Disorders National Walk Challenge Launch and Registration Promotion!! by Karen Bowe-Hause, Director MCR Hemophilia Alliance is again collaborating with NBDF in support of their 2024 Unite for Bleeding Disorders National Walk campaign and is launching the 4th annual HTC Wall of Walkers Challenge. This initiative […]
January 2024 Newsletter
In this Issue… · Welcome 2024 Advocacy Update · Hemophilia Alliance 2024 Hill Day – The United Voices of Our Community Washington Update · Proposed Rule on Affordable Care Act Provisions Published · Congress Puts Off Funding Bills Until March · CMS Publishes Prior Authorization Final Rule Legal Update · Legal Team Update: Beware! Scammers […]
Advocacy Update, January 2024
Advocacy Update Hemophilia Alliance 2024 Hill Day – The United Voices of Our Community by Dean M. Hindenlang, Ph.D. Chair, Advocacy Committee and Secretary, Board of Directors Each year, scores of people arrive on Capitol Hill to meet with members of Congress, to help bring awareness to any number of social, economic, environmental, or health-related […]
Washington Update, January 2024
Washington Update by Ellen Riker & Johanna Gray, Artemis Policy Group, Hemophilia Alliance Advocacy Consultants Proposed Rule on Affordable Care Act Provisions Published Positive developments in lawsuit about copay accumulator adjustors – There have been two positive developments in the lawsuit challenging the HHS rule that allows copay accumulator adjustors. First, the judge in the […]
Legal Update, January 2024
Legal Update Legal Team Update: Beware! Scammers Steal Funds from Department of Health and Human Services (HHS) Grant Recipients by Elizabeth “Issie” Karan, Karan Legal Group, Hemophilia Alliance Legal Counsel Last week, news outlets reported that hackers gained access to the Payment Management Services (PMS) system utilized by HHS to process civilian grant payments and, […]
MCR Update, January 2024
Member and Community Relations Update “The January Blues” by the Member and Community Relations Team As you painfully know, every January payers shift the landscape and HTCs experience many obstacles to their pharmacy program. Benefits, formularies, prior authorizations, and prior authorization processes change. HTCs may lose patients to commercial specialty pharmacies and the narrowing […]
Alliance Update, January 2024
Alliance Update Viva Engage! Hemophilia Alliance Virtual Networking Platform by Marketing & Operations Team
Notes from the Community, January 2024
Notes from the Community WFH 2024 World Congress taking place this April Do you want to learn about the very latest developments in our field? The WFH 2024 World Congress—taking place in Madrid, Spain, from April 21 to 24—is an unparalleled opportunity for participants to connect, learn, and collaborate in one of Europe’s most dynamic […]