Hemophilia Alliance 2024 Hill Day – The United Voices of Our Community
by Dean M. Hindenlang, Ph.D.
Chair, Advocacy Committee and Secretary, Board of Directors

Each year, scores of people arrive on Capitol Hill to meet with members of Congress, to help bring awareness to any number of social, economic, environmental, or health-related causes and concerns. Each person, and each group, seeks to inform, enlighten, and inspire a new point of view within their elected officials.

Similarly, the bleeding disorders community makes their annual pilgrimage, in kind, working to ensure that patients, Hemophilia Treatment Centers, clinicians, insurance and medication costs, changes to current laws or policies, and medication-based access issues are advocated for with decision makers on Capitol Hill. It is essential to the bleeding disorders community that we bring awareness to issues that may otherwise be overlooked or decided without our collective voices weighing in.

This year, the Hemophilia Alliance will be making our annual visit to Capitol Hill on Thursday, April 18, 2024. However, unlike many other groups, we are unique in our approach, and in our collective, unified voice from which we speak.

Patients, family members, advocates, nurses, pharmacists, hematologists, and social workers, join us in our meetings. This singular act, this collective voice, our holistic approach, helps to ensure that we can provide unparalleled education, a new perspective, and indisputable expertise — as members of our comprehensive care team are in the room when we meet with our Congressional representatives!

Make certain that your HTC and patients served by your HTC join the Alliance on Capitol Hill on April 18! Our united voice, our collective, comprehensive approach, is unparalleled and unstoppable in what we can accomplish together!

See you on The Hill,

Dean