December 2023 Newsletter

In this Issue… Notes from Joe · Final Edition Advocacy and Legal Update · Future of Copay Accumulator Adjustor Programs Remain Up in the Air · Proposed Rule on Affordable Care Act Provisions Published Member and Community Relations Update · Medicare Part B Update – Modifiers Required on All Medicare Part B Claims Starting January […]

Notes from Joe, December 2023

Notes from Joe Final Edition by Joe Pugliese, President and CEO Dear Bleeding Disorders Community, It has been, my wife, Karen and my privilege and pleasure to be part of this community since 1977. It is beyond remarkable how much this community has endured, evolved, and grown over this time. Since this is my final […]

Washington Update, December 2023

Advocacy and Legal Update Future of Copay Accumulator Adjustor Programs Remain Up in the Air by Ellen Riker & Johanna Gray, Artemis Policy Group, Hemophilia Alliance Advocacy Consultants In October, the Alliance Newsletter included an article on the United States District Court for the District of Columbia ruling that insurers can no longer implement copay […]

Payer Update, December 2023

Member and Community Relations Update Medicare Part B Update – Modifiers Required on All Medicare Part B Claims Starting January 1, 2024 by Ellen Riker, Artemis Policy Group, Hemophilia Alliance Advocacy Consultant As of January 1, 2024, CMS is requiring that all Medicare Part B claims submitted by HTCs for separately payable drugs purchased using […]

Alliance Update, December 2023

Alliance Update 2023 Alliance Meetings Create Forums for Education, Collaboration and Fun by Marketing & Operations Team The Hemophilia Alliance has successfully organized seven in-person meetings throughout the year, providing an essential platform for its members to come together, collaborate, and share invaluable insights within the hemophilia community. We started off 2023 with the Pharmacist […]

Notes from the Community, December 2023

Notes from the Community Announcing Project and Patient Assistance Grants for 2024! If your organization–or an organization you know–is interested in applying but feels like it does not have the capacity or expertise to do so, please reach out to Michael Craciunoiu, HAF Chair, at chair@hemophiliaalliancefoundation.org! We can direct you to additional resources that will […]

November 2023 Newsletter

In this Issue… Notes from Joe Legal Update · Genesis Healthcare Inc. v. Becerra: District Court Invalidates HRSA’s Patient Definition and Implementation in 340B Program Advocacy Update · 2025 NBPP Proposed Rule Released with Positive Policies for Bleeding Disorders Community Member and Community Relations Update · From Frustration to Opportunity – Maximizing HANS as a […]

Notes from Joe, November 2023

Notes from Joe by Joe Pugliese, President and CEO “The single biggest problem in communication is the illusion that it has taken place.” George Bernard Shaw The Alliance just completed a very successful Physician /Administrator meeting in CA. The program was well attended, with 31 business administrators and 27 physicians. The sessions were led by […]

Legal Update, November 2023

Legal Update Genesis Healthcare Inc. v. Becerra: District Court Invalidates HRSA’s Patient Definition and Implementation in 340B Program by Elizabeth “Issie” Karan, Karan Legal Group, Hemophilia Alliance Legal Counsel On November 3, 2023, the US District Court for the District of South Carolina Florence Division ruled in favor of Genesis Healthcare Inc., a federally qualified […]

Washington Update, November 2023

Advocacy Update 2025 NBPP Proposed Rule Released with Positive Policies for Bleeding Disorders Community by Johanna Gray, Artemis Policy Group, Hemophilia Alliance Advocacy Consultant On November 15, the Department of Health and Human Services (HHS) and the Centers for Medicare and Medicaid Services (CMS) released the Notice of Benefit and Payment Parameters (NBPP) proposed rule […]