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Hemo Alliance Newsletters

Notes from the Community, December 2023

Notes from the Community

Announcing Project and Patient Assistance Grants for 2024!

We are excited to announce that applications are now available on-line for the Hemophilia Alliance Foundation 2024 Project and Patient Assistance Grants. Since 2009, the Alliance Foundation has awarded grants to help 140+ chapters, treatment centers, and national community organizations serving persons with heritable bleeding and thrombotic disorders. The cycle of funding currently available is for the following two types of grants:

  • Project grants which are meant to enable eligible organizations to build on their capacity to achieve and expand their mission.
  • Patient assistance grants which are meant to render direct patient/family financial assistance through eligible organizations to alleviate financial hardship as a result of, or which impacts on, the management of a bleeding or thrombotic disorder.

To be eligible the applicant organization must serve persons with heritable bleeding and thrombotic disorders and operate under IRS tax exemption 501(c)(3), 170(c)(1), or other nonprofit status. The deadline for application submission is January 31, 2024, and must be submitted directly on the Hemophilia Alliance Foundation website.

For 2024, the ceiling for grant applications is as follows:

  • Local applicants (e.g., chapters/member organizations, HTCs): $8,000
  • National organizations, and the eight HHS-designated federally funded regional core coordinating centers: $10,000

Applications for project grants should demonstrate clear, measurable outcomes and a strong commitment to the heritable bleeding and thrombotic disorders community. The patient assistance grant application is shorter but requires submission of the organization’s patient assistance policy.
Organizations interested in submitting applications should review the 2024 Grant Guidance thoroughly before finalizing their applications. See our website at https://hemophiliaalliancefoundation.org or use the QR Code below for more information and apply on-line today!



If your organization–or an organization you know–is interested in applying but feels like it does not have the capacity or expertise to do so, please reach out to Michael Craciunoiu, HAF Chair, at chair@hemophiliaalliancefoundation.org! We can direct you to additional resources that will help you submit a strong application.

Also in this Issue…

Notes from Joe
· Final Edition

Advocacy and Legal Update
· Future of Copay Accumulator Adjustor Programs Remain Up in the Air
· Proposed Rule on Affordable Care Act Provisions Published

Member and Community Relations Update
· Medicare Part B Update – Modifiers Required on All Medicare Part B Claims Starting January 1, 2024
· Recap of Payer Activity

Alliance Update
· 2023 Alliance Meetings Create Forums for Education, Collaboration and Fun
· 2024 Meeting Schedules

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

NameEmailPhone
Jeff Blakejeff@hemoalliance.org317-657-5913
Jennifer Borrillo, MSW, LCSW, MBAborrillo@hemoalliance.org504-376-5282
Jeff Amondamond@hemoalliance.org608-206-3132
Jennifer Andersjennifer@hemoalliance.org954-218-8509
Angela Blue, MBAangela@hemoalliance.org651-308-3902
Karen Bowe-Hausekaren@hemoalliance.org717-571-0266
Zack Duffyzack@hemoalliance.org503-804-2581
Michael B. GlombMGlomb@ftlf.com202-466-8960
Johanna Gray, MPAjgray@artemispolicygroup.com703-304-8111
Kiet Huynhkiet@hemoalliance.org917-362-1382
Elizabeth Karanelizabeth@karanlegalgroup.com612-202-3240
Kollet Koulianos, MBAkollet@hemoalliance.org309-397-8431
Roland P. Lamy, Jr.roland@hemoalliance.org603-491-0853
Dr. George L. Oestreich, Pharm.D., MPAgeorge@gloetal.com573-230-7075
Theresa Parkertheresa@hemoalliance.org727-688-2568
Mark Plencnermark@hemoalliance.org701-318-2910
Ellen Rikereriker@artemispolicygroup.com202-257-6670