MCR Update, May 2024
Member and Community Relations Team Update HANS Agreement with Emerging Therapy Solutions (ETS) for Gene Therapy Products by Angela Blue, Director Member and Community Relations The Hemophilia Alliance is excited to share details of the newest HANS opportunity available to our members for gene therapy products! The agreement is available through a new addendum […]
Washington Update, May 2024
Washington Update by Artemis Policy Group HHS Final Rules Strengthen Protections for People with Bleeding and Clotting Disorders Earlier this month, the Office for Civil Rights, within the Department of Health and Human Services (HHS), finalized a new rule which should improve access to behavioral health facilities for people with bleeding and clotting disorders. The […]
Notes from the Community, May 2024
Notes from the Community Hemophilia Alliance Foundation Announces Innovation Grant Cycle Also in this Issue… Jeff Weighs In Marketing and Operations Team Update · Spring Is In The Air · Upcoming Webinar and Meeting Schedules Advocacy and Legal Update · Hill Day Alumni’s Comic Book, “What is Factor 8?”, Featured on the News Member and […]
April 2024 Newsletter
In this Issue… Jeff Weighs In Advocacy and Legal Update · OPA Releases Much Anticipated Alternative Dispute Resolution Rule for the 340B Program · New Leadership at the Office of Pharmacy Affairs · Matsui Introduces Legislation to Codify the Use of Contract Pharmacies in the 340B Program Washington Update · Hemophilia Alliance Hill Day Focuses […]
Jeff Weighs In, April 2024
Jeff Weighs In by Jeff Blake, President and CEO Also in this Issue… Advocacy and Legal Update · OPA Releases Much Anticipated Alternative Dispute Resolution Rule for the 340B Program · New Leadership at the Office of Pharmacy Affairs · Matsui Introduces Legislation to Codify the Use of Contract Pharmacies in the 340B Program Washington […]
Washington Update, April 2024
Washington Update Hemophilia Alliance Hill Day Focuses on 340B and Alternative Funding Programs by Ellen Riker and Johanna Gray, Artemis Policy Group With the goal of educating Members of Congress on the importance of the 340B Drug Discount Program to Hemophilia Treatment Centers (HTCs) and the bleeding disorders community, 120 advocates headed to Capitol Hill […]
Advocacy Update, April 2024
Advocacy and Legal Update by Elizabeth ‘Issie’ Karan, Legal Counsel OPA Releases Much Anticipated Alternative Dispute Resolution Rule for the 340B Program On April 18, 2024, the Health Resources and Services Administration (HRSA) and the Department of Health and Human Services (HHS) released a final rule on the Alternative Dispute Resolution (ADR) process in 340B. […]
MCR Update, April 2024
Member and Community Relations Team Update Linda Gammage Social Work Conference Great Success by Member and Community Relations Team Forty-five social workers from around the country convened in New Orleans, Louisiana for the 26th annual Linda Gammage Social Work Conference. The conference this year was a rewarding and inspiring experience for all. [Click on […]
Alliance Update, April 2024
Marketing and Operations Team Update Post-New HTC Staff Orientation Update by Marketing & Operations Team We were very excited to return to New York City this past March for our New HTC Staff meeting. We got to see many new faces from the Centers, along with a turnout of over 60 attendees – ranging from […]
Notes from the Community, April 2024
Notes from the Community 4th National HTC Patient Satisfaction Survey Underway The Hemophilia Alliance is pleased to promote the 2024 National HTC Patient Satisfaction Survey (PSS), which was developed by HTC Networks and Patient Satisfaction Survey (PSS) Steering Committee, representing the HTCs in the US. This is the fourth iteration of a patient satisfaction survey; […]