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Hemo Alliance Newsletters

Notes from the Community, April 2024

Notes from the Community

4th National HTC Patient Satisfaction Survey Underway

The Hemophilia Alliance is pleased to promote the 2024 National HTC Patient Satisfaction Survey (PSS), which was developed by HTC Networks and Patient Satisfaction Survey (PSS) Steering Committee, representing the HTCs in the US. This is the fourth iteration of a patient satisfaction survey; the input received from patients and families through past surveys helped HTCs identify areas where they may have strengths and where they need to improve.

The survey should be completed by patients and caregivers that had contact with an HTC in 2023. The survey is open until May 31, 2024 and can be completed online at www.htcsurvey.com.

The PSS Steering Committee has prepared materials that HTCs can utilize with patients to encourage them to participate in the survey. Please contact Eleanor Carrick at carricke@ohsu.edu with any additional questions.

Also in this Issue…

Jeff Weighs In

Advocacy and Legal Update
· OPA Releases Much Anticipated Alternative Dispute Resolution Rule for the 340B Program
· New Leadership at the Office of Pharmacy Affairs
· Matsui Introduces Legislation to Codify the Use of Contract Pharmacies in the 340B Program

Washington Update
· Hemophilia Alliance Hill Day Focuses on 340B and Alternative Funding Programs

Member and Community Relations Update
· Linda Gammage Social Work Conference Great Success

Marketing and Operations Team Update
· Post-New HTC Staff Orientation Update
· Upcoming Meeting Schedules

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

NameEmailPhone
Jeff Blakejeff@hemoalliance.org317-657-5913
Jennifer Borrillo, MSW, LCSW, MBAborrillo@hemoalliance.org504-376-5282
Jeff Amondamond@hemoalliance.org608-206-3132
Jennifer Andersjennifer@hemoalliance.org954-218-8509
Angela Blue, MBAangela@hemoalliance.org651-308-3902
Karen Bowe-Hausekaren@hemoalliance.org717-571-0266
Zack Duffyzack@hemoalliance.org503-804-2581
Michael B. GlombMGlomb@ftlf.com202-466-8960
Johanna Gray, MPAjgray@artemispolicygroup.com703-304-8111
Kiet Huynhkiet@hemoalliance.org917-362-1382
Elizabeth Karanelizabeth@karanlegalgroup.com612-202-3240
Kollet Koulianos, MBAkollet@hemoalliance.org309-397-8431
Roland P. Lamy, Jr.roland@hemoalliance.org603-491-0853
Dr. George L. Oestreich, Pharm.D., MPAgeorge@gloetal.com573-230-7075
Theresa Parkertheresa@hemoalliance.org727-688-2568
Mark Plencnermark@hemoalliance.org701-318-2910
Ellen Rikereriker@artemispolicygroup.com202-257-6670