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Hemo Alliance Newsletters

Notes from the Community, March 2020

Notes from the Community

Hemophilia Alliance Foundation Announces New "Large" Grant

GUIDELINES FOR HEMOPHILIA ALLIANCE FOUNDATION "LARGE" GRANT

The Hemophilia Alliance Foundation has NEW funding for a “large” grant. This funding will allow an organization to fund a larger-scope project than what they are able to do with current smaller grants. This will be a one-time, one-year grant subject to the availability of funds.

Purpose The goal of this grant is similar to the goals for other applicants:

  • To encourage larger scale, creative, and unique projects
  • To serve the community with resources that will improve the lives of patients with blood disorders

These funds may not be used in conjunction with grants from the Hemophilia Alliance.

Requirements

  • A non-profit 501 (c) (3) organization
  • An organization that has a history and documented track record of serving the blood disorders community
  • Completion of the required application
  • The grantee will be responsible for a conference call meeting with HAF board members during and/or after project completion to discuss the process and what could improve the process as well as what worked during the process
  • Grant funds will NOT be awarded for the following costs:
    • Administrative or overhead costs exceeding 8% of budget
    • Basic, laboratory, or clinical research or related equipment
    • Underwriting or sponsorship of fundraising events
    • Recurring costs
  • Collaborative projects between more than one organization are encouraged and given high priority

Timeline

The application period will be April 1 – July 30, 2020 with a project date of September 1, 2020 – August 30, 2021.

Questions

If you have any questions about this grant process, please contact Brenda Riske Brendariske@hemophiliaalliancefoundation.org.

Also in this Issue…

Notes from Joe
· Coronavirus Update

Alliance Update
· Webinars on COVID 19 and Changes in Healthcare
· Alliance Meeting for New HTC Personnel is Postponed
· Contract Data Reporting
· 2020 Meeting Schedule

Legal Update
· Why and How HTCs Can Use Referral Arrangements in the 340B Program

Washington Update
· Policymakers Respond to COVID-19
· Virtual Hill Day Details

Payer Update

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

NameEmailPhone
Jeff Blakejeff@hemoalliance.org317-657-5913
Jennifer Borrillo, MSW, LCSW, MBAborrillo@hemoalliance.org504-376-5282
Jeff Amondamond@hemoalliance.org608-206-3132
Jennifer Andersjennifer@hemoalliance.org954-218-8509
Angela Blue, MBAangela@hemoalliance.org651-308-3902
Karen Bowe-Hausekaren@hemoalliance.org717-571-0266
Zack Duffyzack@hemoalliance.org503-804-2581
Michael B. GlombMGlomb@ftlf.com202-466-8960
Johanna Gray, MPAjgray@artemispolicygroup.com703-304-8111
Kiet Huynhkiet@hemoalliance.org917-362-1382
Elizabeth Karanelizabeth@karanlegalgroup.com612-202-3240
Kollet Koulianos, MBAkollet@hemoalliance.org309-397-8431
Roland P. Lamy, Jr.roland@hemoalliance.org603-491-0853
Dr. George L. Oestreich, Pharm.D., MPAgeorge@gloetal.com573-230-7075
Theresa Parkertheresa@hemoalliance.org727-688-2568
Mark Plencnermark@hemoalliance.org701-318-2910
Ellen Rikereriker@artemispolicygroup.com202-257-6670