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Hemo Alliance Newsletters

Notes from the Community, June 2023

Notes from the Community
  • UC San Diego HTC Sponsors Course on Musculoskeletal Ultrasound
  • by Marlene Zepeda, UC San Diego

    The UC San Diego Hemophilia and Thrombosis Treatment Center is offering a three-day course on musculoskeletal ultrasound (MSKUS) and joint injection. The course is free to providers connected with HTCs and CME credits will be earned by participants. For more information on the course and to register for the course check out this link.


  • Reminder: The 4th Annual Innovation Grant


  • The Hemophilia Alliance Foundation is excited to offer its 4th annual funding opportunity for the Innovation Grant. This funding will allow an organization to fund a larger-scope project than what they are able to do with current HAF smaller grants.

    This is a one-year grant with projects to be completed within the grant year which runs between September 1, 2023 and August 31st, 2024.

    The goal of the Innovation Grant is to encourage larger scale, unique, and innovative projects that will serve the community with resources that will improve the lives of patients with inherited bleeding and thrombotic disorders.

    To be eligible the applicant organization must serve persons with heritable bleeding and thrombotic disorders and operate under IRS tax exemption 501(c)(3) or 170(c)(1) or other nonprofit status. Eligible organizations would include:

    • Local applicants such as chapters, member organizations, and HTCs
    • National organizations
    • The eight HHS-designated federally-funded regional core coordinating centers.
    • The maximum amount per grant request is $50,000. Projects should demonstrate clear and measurable outcomes.

      Priority for funding will be given to new projects aimed at expansion of capacity, collaboration (between two or more organizations), and innovation.

      Organizations interested in submitting applications should review the 2023 Grant Guidance thoroughly before finalizing their applications. To see our Grant Guidance and to apply online, visit our website at: https://hemophiliaalliancefoundation.org/grant-information

      The deadline for application submission is July 18th, 2023. Applications must be submitted directly on the Hemophilia Alliance Foundation website.

      For questions about the Innovation Grant process, please contact the Hemophilia Alliance Foundation Grant Committee Chairman, Ralph Gruppo, MD – ralph.gruppo@fuse.net

Also in this Issue…

Notes from Joe
· Going, Going …… Not so fast

Alliance Update
· New Product Guide Available
· New HTC Staff Meeting in NYC

Payer Update
· State Medicaid Redetermination in Process NOW
· Linda Gammage Social Worker Planning Committee Member Needed

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

NameEmailPhone
Jeff Blakejeff@hemoalliance.org317-657-5913
Jennifer Borrillo, MSW, LCSW, MBAborrillo@hemoalliance.org504-376-5282
Jeff Amondamond@hemoalliance.org608-206-3132
Jennifer Andersjennifer@hemoalliance.org954-218-8509
Angela Blue, MBAangela@hemoalliance.org651-308-3902
Karen Bowe-Hausekaren@hemoalliance.org717-571-0266
Zack Duffyzack@hemoalliance.org503-804-2581
Michael B. GlombMGlomb@ftlf.com202-466-8960
Johanna Gray, MPAjgray@artemispolicygroup.com703-304-8111
Kiet Huynhkiet@hemoalliance.org917-362-1382
Elizabeth Karanelizabeth@karanlegalgroup.com612-202-3240
Kollet Koulianos, MBAkollet@hemoalliance.org309-397-8431
Roland P. Lamy, Jr.roland@hemoalliance.org603-491-0853
Dr. George L. Oestreich, Pharm.D., MPAgeorge@gloetal.com573-230-7075
Theresa Parkertheresa@hemoalliance.org727-688-2568
Mark Plencnermark@hemoalliance.org701-318-2910
Ellen Rikereriker@artemispolicygroup.com202-257-6670