MCR’s In the Community – MCR Team

The Member and Community Relations (MCR) Team is comprised of Angela Blue, Jeff Amond, Karen Bowe-Hause, Mark Plencner, Zack Duffy, Roland Lamy, George Oestreich and Kollet Koulianos. Jennifer Borrillo, Senior Vice President of Member and Community Relations, leads the team. As you know, a large part of our focus is assisting our member HTCs on a variety of issues. Some of you may not know that we are also out in the community almost every month attending events that support the great work being done in the bleeding and clotting disorder community. Going forward, the MCR Team will highlight our community work in our Hemophilia Alliance Newsletter twice a year (June & December). Please read through the events we have attended. Maybe you were there, and we missed you. Maybe you would have attended an event if you knew we were going to be there. Our goal is to get the word out so you know what we will be attending. Also, let us know of any future events that you would like us to attend. As you know, we can’t attend everything, but we do our best to meet the needs of our HTCs and Community Partners.

Advocacy Events

• National Bleeding Disorders Foundation (NBDF) Colorado Chapter Statehouse Day
• Ohio State Advocacy Day
• Bleeding Disorder Foundation of North Carolina State Advocacy Day
• NBDF Comprehensive Care &Sustainability Collaborative Advisory Board Meeting
• Pacific Northwest Bleeding Disorders State Advocacy Training and Hill Day
• Hemophilia Council of California Legislative Day
• NBDF Washington Days
• Eastern PA Bleeding Disorders Foundation/Western PA Bleeding Disorders Foundation Advocacy Day

Community Events – Local/Regional

• Wisconsin Bleeding Disorder Conference
• Hemophilia Foundation of Minnesota and the Dakotas (HFMD) Annual Meeting
• Tri-State Bleeding Disorders Patient Education Weekend – Cincinnati, OH
• Bleeding Disorders Foundation of North Carolina Medical Symposium
• NBDF Colorado Chapter Education Empowerment Weekend
• Virginia Hemophilia Foundation Annual Meeting
• Hemophilia Council of California Summit and Rare Disease Forum
• Western States Regional Meeting
• Bleeding Disorder Alliance of North Dakota (BDAND) Education Day and Walk
• Hemophilia Association of NJ Annual Meeting
• Eastern PA Bleeding Disorders Foundation Annual Meeting
• PENN Blood Disorder Program Annual Spring Education Event
• Texas Bleeding Disorders Conference

Community Events – National

• Partners PRN Advanced PT Meeting
• Coalition for Hemophilia B Annual Symposium
• Partners in Bleeding Disorders Education Meeting
• Self-Insurance Institute of America (SIIA) Cell & Gene Therapy Conference
• 340B Winter Coalition Meeting
• Thrombosis & Hemostasis Summit of North America (THSNA) Meeting
• YETI – Youth Effectively Transition to Independence Conference
• Hemophilia Federation of America Mild Matters Physician Forum
• Hemophilia Federation of America Annual Symposium

Future Events

• 340B Summer Coalition Meeting: July 8 – 10, National Harbor, Maryland
• Gateway Hemophilia Foundation Meeting: July 12 – 13, Chesterfield, Missouri
• Partners PRN Non-Clinical HTC Staff Training Program: July 15 – 16, Indianapolis, Indiana
• Western PA Bleeding Disorders Foundation Annual Meeting: July 18, Pittsburgh, Pennsylvania
• VWD Connect Foundation – US National Type 3/Severe VWD Conference: July 19 – 22, West Palm Beach, Florida
• Basic Partners Program for Social Workers: August 5 – 7, Indianapolis, Indiana
• Coalition for Hem B Gala: August 8, Melville, New York
• Oklahoma Hemophilia Foundation Annual Meeting: August 9 – 10, Tulsa, Oklahoma
• Arizona Hemophilia Foundation Annual Meeting: August 16 – 18, Phoenix, Arizona
• Familia de Sangre: Sept 6 – 8, Anaheim, California
• NBDF Bleeding Disorders Conference: September 12 – 14, Atlanta, Georgia
• Hemophilia Foundation of Arkansas Annual Meeting: September 16 -18, Bismarck, Arkansas
• SIIA National Conference: September 22 – 24, Phoenix, Arizona
• Partners PRN Advanced Nursing Program: October 20 – 22, Indianapolis, Indiana
• American Thrombosis & Hemostasis Network Data Summit: October 22 – 23, Atlanta, Georgia
• NBDF Red Tie Soiree: Oct 25, Chicago, Illinois
• Northeast Regional Meeting: October 28 – 29, New York City, New York
• Southeast Regional Meeting: November 6 – 8, Louisville, Kentucky
• Eastern PA Bleeding Disorders Foundation Community Empowerment Day: November 2, Hershey, Pennsylvania
• New England Hemophilia Association Fall Fest: November 8 – 10, Springfield, Massachusetts
• Utah Hemophilia Foundation – Family Fest: Nov 9, Draper, Utah
• Partners Motivational Interviewing Workshop: Nov 18 – 20, Indianapolis, Indiana