Agenda
Gene Therapy Town Hall
June 20th and 21st 2022
Chicago, IL
Monday
7:30 – Breakfast
8:15 – Welcome – Introductions
8:30 – Gene Therapy in bleeding disorders community – Joe Pugliese (.pdf, .pptx, video)
9:15 – Patient Perspective NHF, Coalition for Hemophilia B – Len Valentino M.D. (.pdf, .pptx, video), Glenn Mones (.pdf, .pptx, video)
10:00 – Break
10:30 – Clinical Perspective panel discussion: Rebecca Kruse-Jarres, M.D., Miguel Escobar, M.D., M. Tarantino, M.D. (.pdf, .pptx, video)
11:15 – Payer Perspective panel discussion Private Payers, Medicaid, Medicare – Jeff Blake (.pdf, .pptx, video), Roland Lamy (.pdf, .pptx, video), Kollet Koulianos (.pdf, .pptx, video), Ellen Riker (.pdf, .pptx, video)
12:15 – Lunch
1:30 – Single Case Agreement: Private Payer Financing Models – Roland Lamy, Jeff Blake (.pdf, .pptx, video)
2:00 – Buildout – Operational Consideration – Steve Powell (.pdf, .pptx, video), Jennifer Borrillo (.pdf, .pptx, video), Andy Leavitt, M.D. (.pdf, .pptx, video)
3:00 – Break
3:30 – Revenue Opportunities and Investments – Breakout session
3:30 – Patient Focus managing across sites – Breakout session
4:30 – Report out on the breakout sessions
5:00 – End of Day
Tuesday
7:30 – Breakfast
8:30 – Regional Report: – Susan Lattimore, Regina Butler, Denice Chevannes (.pdf, .pptx, video)
9:30 – ATHN – Mike Recht, M.D. Ph.D (.pdf, .pptx, video)
10:00 – Break
10:30 – Equipment Needed – Mark Plencner (.pdf, .pptx, video)
10:45 – What Can Go Wrong? – Sean Singh, Mark Plencner, Jeff Blake (.pdf, .pptx, video)
11:00 – Next Steps – Joe Pugliese (.pdf, .pptx, video)
11:30 – End of meeting