Hemo Alliance Newsletters

Gene Therapy Town Hall Chicago 2022 Presentations Are Now Available!

Agenda

Gene Therapy Town Hall
June 20th and 21st 2022
Chicago, IL

Monday
7:30 – Breakfast
8:15 – Welcome – Introductions
8:30 – Gene Therapy in bleeding disorders community – Joe Pugliese (.pdf, .pptx, video)
9:15 – Patient Perspective NHF, Coalition for Hemophilia B – Len Valentino M.D. (.pdf, .pptx, video), Glenn Mones (.pdf, .pptx, video)
10:00 – Break
10:30 – Clinical Perspective panel discussion: Rebecca Kruse-Jarres, M.D., Miguel Escobar, M.D., M. Tarantino, M.D. (.pdf, .pptx, video)
11:15 – Payer Perspective panel discussion Private Payers, Medicaid, Medicare – Jeff Blake (.pdf, .pptx, video), Roland Lamy (.pdf, .pptx, video), Kollet Koulianos (.pdf, .pptx, video), Ellen Riker (.pdf, .pptx, video)
12:15 – Lunch
1:30 – Single Case Agreement: Private Payer Financing Models – Roland Lamy, Jeff Blake (.pdf, .pptx, video)
2:00 – Buildout – Operational Consideration – Steve Powell (.pdf, .pptx, video), Jennifer Borrillo (.pdf, .pptx, video), Andy Leavitt, M.D. (.pdf, .pptx, video)
3:00 – Break
3:30 – Revenue Opportunities and Investments – Breakout session
3:30 – Patient Focus managing across sites – Breakout session
4:30 – Report out on the breakout sessions
5:00 – End of Day

Tuesday
7:30 – Breakfast
8:30 – Regional Report: – Susan Lattimore, Regina Butler, Denice Chevannes (.pdf, .pptx, video)
9:30 – ATHN – Mike Recht, M.D. Ph.D (.pdf, .pptx, video)
10:00 – Break
10:30 – Equipment Needed – Mark Plencner (.pdf, .pptx, video)
10:45 – What Can Go Wrong? – Sean Singh, Mark Plencner, Jeff Blake (.pdf, .pptx, video)
11:00 – Next Steps – Joe Pugliese (.pdf, .pptx, video)
11:30 – End of meeting

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

NameEmailPhone
Jeff Blakejeff@hemoalliance.org317-657-5913
Jennifer Borrillo, MSW, LCSW, MBAborrillo@hemoalliance.org504-376-5282
Jeff Amondamond@hemoalliance.org608-206-3132
Jennifer Andersjennifer@hemoalliance.org954-218-8509
Angela Blue, MBAangela@hemoalliance.org651-308-3902
Karen Bowe-Hausekaren@hemoalliance.org717-571-0266
Zack Duffyzack@hemoalliance.org503-804-2581
Michael B. GlombMGlomb@ftlf.com202-466-8960
Johanna Gray, MPAjgray@artemispolicygroup.com703-304-8111
Kiet Huynhkiet@hemoalliance.org917-362-1382
Elizabeth Karanelizabeth@karanlegalgroup.com612-202-3240
Kollet Koulianos, MBAkollet@hemoalliance.org309-397-8431
Roland P. Lamy, Jr.roland@hemoalliance.org603-491-0853
Dr. George L. Oestreich, Pharm.D., MPAgeorge@gloetal.com573-230-7075
Theresa Parkertheresa@hemoalliance.org727-688-2568
Mark Plencnermark@hemoalliance.org701-318-2910
Ellen Rikereriker@artemispolicygroup.com202-257-6670