Washington Update, July 2022
Washington Update by Johanna Gray, Advocacy Consultant All eyes in Washington are turning towards the Senate, which is likely to consider drug pricing reforms as part of a reconciliation package later this month. Whether the final bill comes together remains up in the air – but as of this writing, all 50 Democratic Senators, including […]
Washington Update, May/June 2022
Washington Update Alliance Advocacy Update by Johanna Gray, Advocacy Consultant The Alliance advocates throughout the year on behalf of HTCs and their patients, and I’m pleased to share two recent comment letters that we have done as an example. Policymakers in Washington and in states across the country have been focused on pharmacy benefit managers […]
Washington Update, April 2022
Washington Update Preparing for the End of the COVID-19 Public Health Emergency by Johanna Gray, Advocacy Consultant Most experts expect that the COVID-19 Public Health Emergency will end later this summer. First declared in March 2020, it has been extended in 90-day increments since then, with the current declaration set to expire in July 2022. […]
Washington Update, Spring 2022
Washington Update Recap of the Alliance Hill Day! by Johanna Gray, Advocacy Consultant I have to start the recap of our recent Alliance Hill Day with a huge THANK YOU to all of the participants. More than 80 people representing 29 HTCs and 22 states joined for meetings with Members of Congress and their staff […]
Washington Update, February 2022
Washington Update Join us for the Alliance Hill Day! by Johanna Gray, Advocacy Consultant We are excited to be planning for the 2022 Hemophilia Alliance Virtual Hill Day in April, 2022! All Alliance members and their patients are invited to join us to advocate for the bleeding disorders community from home. Here’s what you need […]
Washington Update, December 2021
Washington Update Year in Review by Johanna Gray, Advocacy Consultant We had an active year in Washington, working to advocate on behalf of HTCs and the broader bleeding disorders community, and doing our best to translate everything happening here for the community. As we look back, here are a few highlights: Implementation of the Hemophilia […]
Washington Update, September 2021
Washington Update by Johanna Gray We’re in the midst of another very busy September in Washington! Here’s the latest: Federal funding: Congress has to pass legislation to fund the government by the October 1, 2021 start of fiscal year 2022. They are likely to pass a continuing resolution (CR) to fund the government at current […]
Washington Update, August 2021
Washington Update Drug Pricing Update by Johanna Gray August is typically quiet in Washington as Congress goes on recess and everyone else goes on vacation. Like so much of life these days, this August isn’t normal and has been pretty busy, especially on policies related to drug pricing. Here’s what you need to know: Bipartisan […]
Washington Update, June 2021
Washington Update by Johanna Gray It’s shaping up to be another busy summer in Washington! Here are a few quick updates about recent issues we’ve been tracking: California v. Texas: On June 17th, the United States Supreme Court released its opinion in the California v. Texas lawsuit challenging the constitutionality of the Affordable Care Act […]
Washington Update, May 2021
Washington Update Hill Day Recap by Johanna Gray The Hemophilia Alliance held another successful virtual Hill Day in early May. We had 17 teams of advocates – including HTC staff members, patient advocates, representatives from NHF and HFA, and Alliance contractors and staff – participate in nearly 130 meetings with Congressional offices. We discussed a […]