Category: Notes from the Community

Notes from the Community, January 2021

Notes from the Community Celebrating 30 Years Young! The Coalition for Hemophilia B Reaches a Milestone Three decades ago, a small but dedicated group of families and individuals understood that people affected by Hemophilia B had unique needs. A generation later, we remain driven by the wants, hopes, and dreams of the families we serve […]

Notes from the Community, November 2020

The Centers for Disease Control and Prevention (CDC) has recently awarded several organizations with funds for new or continuing five-year cooperative agreements with the agency to do projects to benefit the bleeding disorders community.

Notes from the Community, September 2020

· CDC Awards Cooperative Agreements to Bleeding Disorders Organizations · Hemophilia Alliance Foundation Poster at NHF’s BDC Shows Impact of Grants · NHF Seeks Input for Blue Sky Strategic Plan

Notes from the Community, Hill Day 2020

It is with great pleasure that the Hemophilia Alliance Foundation Board is able to offer an additional round of applications for COVID-19 Relief for Patient Assistance.

Notes from the Community, June 2020

Notes from the Community News from the International Community By Jennifer Laliberte, WFH USA National Director The first ever #WFHVirtualSummit featured a number of inspiring medical and multidisciplinary sessions, WFH educational sessions and free papers. In case you missed it, all sessions will be available for a whole year for registered participants. It’s not too […]

Notes from the Community, May 2020

Notes from the Community All About the WAPPS-Hemo System By Sydney Macleod, McMaster University The Web-Accessible Population Pharmacokinetic Service-Hemophilia (WAPPS-Hemo) is a free online system designed to support the treatment of hemophilia A and B with simplified pharmacokinetic (PK) assessment. Using population PK methodology, WAPPS-Hemo provides HTCs with individualized PK estimates using data from only […]