Notes from the Community, August 2022
Notes from the Community Recent Articles of Interest We wanted to share a few recent articles to make sure that Alliance members have seen them: NHF Hemaware Article on Alternatives to Recalled Desmopressin Nasal Spray: This recent article discusses options for patients who used the recalled Stimate DDAVP nasal spray, including the STAQ Pharma DDAVP […]
Notes from the Community, May/June 2022
Notes from the Community Reminder: Announcing the Hemophilia Alliance Foundation 3rd Annual Innovation Grant The Hemophilia Alliance Foundation (HAF) is excited to offer its 3rd-annual funding opportunity for the Innovation Grant, previously known as the “Large” Grant. This new name better reflects the intent of the grant and the opportunity it provides. This funding will […]
Notes from the Community, April 2022
Notes from the Community Announcing the Hemophilia Alliance Foundation 3rd Annual Innovation Grant The Hemophilia Alliance Foundation (HAF) is excited to offer its 3rd-annual funding opportunity for the Innovation Grant, previously known as the “Large” Grant. This new name better reflects the intent of the grant and the opportunity it provides. This funding will allow […]
Notes from the Community, Spring 2022
Notes from the Community Hemophilia Alliance Foundation Awards 2022 Project/Patient Assistance Grants! Thank you to all of the organizations that applied for a Hemophilia Alliance Foundation (HAF) Project/Patient Assistance Grant! This year, we are proud to announce that we awarded over $500,000 to 58 organizations in the inherited bleeding and thrombotic disorders community. Congratulations to […]
Notes from the Community, December 2021
Notes from the Community Hemophilia Alliance Foundation Announces 2022 Project/Patient Assistance Grant Are you a nonprofit organization that serves the inherited bleeding and thrombotic disorders community? Are you looking for additional grant funds to support your patients and community programs? … Of course you are! The Hemophilia Alliance Foundation (HAF) is pleased to announce that […]
Notes from the Community, November 2021
Notes from the Community Monitoring the Impact of Gene Therapy in Persons with Hemophilia by Crystal Watson, President and CEO of ATHN Gene therapy carries the potential for a functional cure of hemophilia. As we move towards the reality of commercial gene therapy treatments for people with hemophilia, it is incumbent upon the community to […]
Notes from the Community, October 2021
Notes from the Community Hemophilia Alliance has joined the Blood Diseases and Disorders Education Program’s Blood Health Network. Our goal is to learn how the program and our new partner Network can best align with educational activities of others with mutual missions. NHLBI Launches New Blood Diseases and Disorders Education Program This national health education […]
Notes from the Community, September 2021
Notes from the Community Update from the Hemophilia Alliance Foundation Congratulations to our 2021 “Innovation Grant” recipients! Thank you to all of the organizations that applied for the Hemophilia Alliance Foundation’s 2021 Innovation Grant (formerly known as the “Large Grant”). In total, we received nine highly competitive applications for this $50,000 grant, which focuses on […]
Notes from the Community, May 2021
Notes from the Community A. ANNOUNCING: HEMOPHILIA ALLIANCE FOUNDATION 2nd-ANNUAL “LARGE” GRANT The Hemophilia Alliance Foundation (HAF) is excited to offer its 2nd-annual funding opportunity for a “Large” Grant. This funding will allow an organization to fund a larger-scope project than what they are able to do with current HAF smaller grants. This will be […]
Notes from the Community, March 2021
Notes from the Community World Federation of Hemophilia: Global Reach. Local Impact. by Jennifer Laliberté – WFH USA National Director Since 1963, we have worked to improve access to care for all people living with an inherited bleeding disorder, regardless of where they live. In collaboration with our national member organizations and healthcare providers in […]