Notes from the Community, August 2023
Notes from the Community Calling All Pharmacists – Do You Have Your Global Location Number? by Michael Fusaro, Director of Regulatory Compliance, The Alliance Pharmacy The Alliance Pharmacy is working with The Hemophilia Alliance to collect Global Location Numbers (GLN) for each member organization. We are looking to ensure that there is no disruption to […]
Notes from the Community, July 2023
Notes from the Community First Hemophilia Patient to Receive Gene Therapy Outside Clinical Trials by Hemophilia Outreach Center – Green Bay, WI In a recent press release, the Hemophilia Outreach Center of Green Bay, Wisconsin announced that a WI resident is the first ever hemophilia B patient to receive gene therapy since FDA approval of […]
Notes from the Community, June 2023
Notes from the Community UC San Diego HTC Sponsors Course on Musculoskeletal Ultrasound by Marlene Zepeda, UC San Diego The UC San Diego Hemophilia and Thrombosis Treatment Center is offering a three-day course on musculoskeletal ultrasound (MSKUS) and joint injection. The course is free to providers connected with HTCs and CME credits will be earned […]
Notes from the Community, May 2023
Notes from the Community Announcing: The 4th Annual Innovation Grant The Hemophilia Alliance Foundation is excited to offer its 4th annual funding opportunity for the Innovation Grant. This funding will allow an organization to fund a larger-scope project than what they are able to do with current HAF smaller grants. This is a one-year grant […]
Notes from the Community, April 2023
Notes from the Community The Hemophilia Alliance Foundation Update: 2023 Project/Patient Assistance Grants by Amy Marquez, Board Member, Hemophilia Alliance Foundation The Hemophilia Alliance Foundation has been administering grants to eligible organizations since 2013 thanks to the generous funding from the Hemophilia Alliance and The Alliance Pharmacy. The goal of these grants is to enable […]
Notes from the Community, March 2023
Notes from the Community Update on Partners Physician Academy With the generous support of the Hemophilia Alliance and The Alliance Pharmacy, this 5-day training course will take place September 17-22, 2023, in Indianapolis, Indiana. It is open to both pediatric and adult medicine physicians. To see photos and testimonials from the 2022 Physician Academy, explore […]
Notes from the Community, December 2022
Notes from the Community Hemophilia Alliance Foundation: Announcing Project and Patient Assistance Grants! Starting December 1st applications will be available on-line for the Hemophilia Alliance Foundation 2023 Project and Patient Assistance Grants. Since 2009, the Alliance Foundation has awarded over $4 million in grants to help 140+ chapters, treatment centers, and national community organizations serving […]
Notes from the Community, November 2022
Notes from the Community Hemophilia Alliance Foundation: Announcing Project and Patient Assistance Grants! Starting December 1st applications will be available on-line for the Hemophilia Alliance Foundation 2023 Project and Patient Assistance Grants. Since 2009, the Alliance Foundation has awarded over $4 million in grants to help 140+ chapters, treatment centers, and national community organizations serving […]
Notes from the Community, October 2022
Notes from the Community Illinois Ultra-Rare Bleeding Disorders Event a Success by Bob Robinson, Executive Director of the Bleeding Disorders Alliance Illinois (BDAI) The Bleeding Disorders Alliance Illinois (BDAI) brought together an amazing group of more than 50 people with Ultra-Rare Bleeding Disorders for the Ultra-Rare Bleeding Disorders Community Meet-Up on the weekend of September […]
Notes from the Community, September 2022
Notes from the Community HTC Considerations for 2023 DSCSA Requirements by Michael V. Fusaro, PharmD., Compliance Officer – The Alliance Pharmacy A brief history The Drug Supply Chain Security Act (DSCSA) became public law in November of 2013. DSCSA created a series of phased requirements to improve visibility across the supply chain. The 10-year timeline […]