Notes from the Community, June 2024
Notes from the Community VWD Connect Foundation Annual Conference in July: REGISTRATION STILL AVAILABLE! VWD Connect Foundation (VCF) will be holding the 8th Annual National Type 3/Severe Von Willebrand Disease Conference in West Palm Beach, Florida on July 19-22, 2024. The conference provides a four-day patient education conference for Type 3 and severe VWD patients, […]
Notes from the Community, May 2024
Notes from the Community Hemophilia Alliance Foundation Announces Innovation Grant Cycle Also in this Issue… Jeff Weighs In Marketing and Operations Team Update · Spring Is In The Air · Upcoming Webinar and Meeting Schedules Advocacy and Legal Update · Hill Day Alumni’s Comic Book, “What is Factor 8?”, Featured on the News Member and […]
Notes from the Community, April 2024
Notes from the Community 4th National HTC Patient Satisfaction Survey Underway The Hemophilia Alliance is pleased to promote the 2024 National HTC Patient Satisfaction Survey (PSS), which was developed by HTC Networks and Patient Satisfaction Survey (PSS) Steering Committee, representing the HTCs in the US. This is the fourth iteration of a patient satisfaction survey; […]
Notes from the Community, March 2024
Notes from the Community Help Share NBDF and NYU Survey of Bleeding Disorders Community! Since it announced its new name last fall, the National Bleeding Disorders Foundation (NBDF) has been working with a team of graduate students at the New York University Wagner School of Public Service on a project supporting NBDF’s rebranding to expand […]
Notes from the Community, February 2024
Notes from the Community 4th Annual HTC Unite for Bleeding Disorders National Walk Challenge Launch and Registration Promotion!! by Karen Bowe-Hause, Director MCR Hemophilia Alliance is again collaborating with NBDF in support of their 2024 Unite for Bleeding Disorders National Walk campaign and is launching the 4th annual HTC Wall of Walkers Challenge. This initiative […]
Notes from the Community, January 2024
Notes from the Community WFH 2024 World Congress taking place this April Do you want to learn about the very latest developments in our field? The WFH 2024 World Congress—taking place in Madrid, Spain, from April 21 to 24—is an unparalleled opportunity for participants to connect, learn, and collaborate in one of Europe’s most dynamic […]
Notes from the Community, December 2023
Notes from the Community Announcing Project and Patient Assistance Grants for 2024! If your organization–or an organization you know–is interested in applying but feels like it does not have the capacity or expertise to do so, please reach out to Michael Craciunoiu, HAF Chair, at chair@hemophiliaalliancefoundation.org! We can direct you to additional resources that will […]
Notes from the Community, November 2023
Notes from the Community 2023 Unite Walk Wall of Walkers update by Karen Bowe-Hause, Director Member and Community Relations In collaboration with the National Bleeding Disorders Foundation, the Hemophilia Alliance was proud to sponsor the 3rd annual Unite Walk Wall of Walkers campaign, designed with the intent to inspire further partnerships between our member Hemophilia […]
Notes from the Community, October 2023
Notes from the Community Congratulations to our 2023 “Innovation Grant” recipients! by Ralph Gruppo and Amy Marquez, Hemophilia Alliance Foundation The Hemophilia Alliance Foundation is excited to announce this year’s recipients of the Innovation Grant! Thanks to the Hemophilia Alliance and The Alliance Pharmacy for their support and generous donations, we were able to again […]
Notes from the Community, September 2023
Notes from the Community Alliance Sponsors Reception for National Youth Leadership Institute (NYLI) by Karen Bowe-Hause, Director Member & Community Relations The Hemophilia Alliance was pleased to sponsor the NYLI reception at the Bleeding Disorders Conference in August. The speakers at the event were invited by the Hemophilia Alliance and represented a variety of clinical […]