Notes from Joe, May 2021
Notes from Joe Update on the Alliance’s Work on an Intranasal DDAVP by Joe Pugliese Dear Community: In July 2020, Ferring Pharmaceuticals, announced a voluntary recall of all batches of STIMATE nasal spray (a solution of desmopressin acetate used to control bleeding in patients with mild hemophilia A and/or type 1 von Willebrand disease). The […]
Notes from Joe, April 2021
Notes from Joe Protecting Program Income by Joe Pugliese This month, we’re trying something new with the Newsletter. Each month, we provide you with a series of articles on different issues that impact your center. This month, we’re running just a single article on one of the most important issues you may be facing: how […]
Notes from Joe, March 2021
Notes from Joe Imagine That by Joe Pugliese There are only a couple of good things we can say about the last 12 months, probably the most important is we hopefully have the worst days behind us. We are still averaging 1,500 deaths from COVID-19 per day, but the number is trending down and you […]
Notes from Joe, February 2021
Notes from Joe Interesting by Joe Pugliese It’s hard to believe that we’re already half-way through February! The dust is starting to settle in DC. There are 62 new Representatives and 9 new Senators, not to mention the people in new roles in the Biden Administration. I think it is safe to assume that these […]
Notes from Joe, January 2021
Notes from Joe Keep Going by Joe Pugliese There is an old saying, when going through hell, keep going. The optimist would say that is because hell is finite. The last 10 months have tested this nation and the world like it has not been tested since World War II. It would be the rare […]
Notes from Joe, December 2020
Before we dive deeper into all we’ve been through and accomplished this year, I want to give a very exciting breaking news highlight for the community.
Notes from Joe, November 2020
The big news has to be the recent announcements by Pfizer, Moderna and Astra Zeneca about their COVID-19 vaccine clinical trials.
Notes from Joe, October 2020
All of the recent news, including the hearings about our potential new Supreme Court Justice, highlight that people are worried, concerned, and fixated on the cost and access to health care and of course, since it’s an election year, people want to know who to blame. The short answer is all of us, but then it gets more complicated.
Notes from Joe, September 2020
As of this writing, we are in something like day 190 of the hostage crisis.
Notes from Joe, August 2020
Wow, after waiting 25 plus years for a gene therapy product for the hemophilia community, it never occurred to me that Biomarin’s product would be rejected by the FDA last week with a call for additional data on the durability of their product.