Notes from Joe, Spring 2022
Notes from Joe “If not us, who? If not now, when?” – John F. Kennedy by Joe Pugliese, President and CEO Nothing like the real threat of World War III to take one’s mind off the pandemic. We wish everyone the security of a peaceful world, which certainly a big ask. You have to be […]
Notes from Joe, February 2022
Notes from Joe Harmony in Hemophilia by Joe Pugliese, President and CEO When we started the group purchasing organization in 2005, we promised the community that we would invest in supporting them. This support has taken many forms. We provide funding to the ATHN data managers, NHF Advocacy, the USHTC network, Hemophilia Federation of America, […]
A Tribute to Val Bias
In October 1992, there were 5 NHF men (depicted in picture) who were determined to change the NHF narrative. The picture depicts Jonathan Botello, Dana Kuhn, Val Bias, Rich David, and Donald Colburn. At the peak of growing concern with HIV infection among men with hemophilia, the Women’s Outreach Network of the NHF was created […]
Notes from Joe, December 2021
Notes from Joe Looking Back, Planning Ahead by Joe Pugliese, President and CEO 2021 did not live up to the hype! It was all supposed to be better, starting with the pandemic. Oddly in some ways progress on the pandemic was the highlight of the year. We are blessed in the US with three highly […]
Notes from Joe, November 2021
Notes from Joe Show Me The Data! by Joe Pugliese As you know, we’ve been working the last few months on production of the DDAVP NS, and I’m excited to share that the second lot was just produced on November 5, and it will have 6 months of dating from the date of manufacture. We’re […]
Notes from Joe, October 2021
Notes from Joe You Never Know! by Joe Pugliese Way back in 2009, we were trying to get a national payer to contract with all Alliance members (a grand total of about 35 members back then). We were also told by this payer that it was too much trouble to contract with multiple entities. They […]
Notes from Joe, September 2021
Notes from Joe Finally, and thank you! by Joe Pugliese A little more than a year after the worldwide recall of Stimate, there is cGMP manufactured DDAVP NS available in the USA. The product is being produced and distributed by STAQ Pharma, a registered 503B Outsourcing Facility. They shipped 57 vials on Monday, 9/13/2021. They […]
Notes from Joe, August 2021
Notes from Joe Washington Update by Joe Pugliese I find myself again sitting down to write Notes from Joe in another tough week. The people in Haiti are dealing with another terrible natural disaster. The recent news out of Afghanistan is heartbreaking. The picture of people clinging to the sides of a jumbo jet as […]
Notes from Joe, July 2021
Notes from Joe Washington Update by Joe Pugliese It has been a very active first half of the year in our space and the broader debate over health care policy in Washington. Certainly, the biggest news has been the distribution of COVID vaccines that have allowed many of us to return to a more normal […]
Notes from Joe, June 2021
Notes from Joe Working Together to Maintain Gold Standard Care by Joe Pugliese Last month, we focused on the mission of the Alliance and the provided background on the restrictions and requirements for recipients. This month, I want to discuss a few different areas where we can all work together to ensure that our gold […]