Notes from Joe, February 2023

Notes from Joe Stepping Up Our Game by Joe Pugliese, President and CEO Last April the board and staff of the Hemophilia Alliance met to lay out a five-year strategic plan. When the smoke cleared, we came away from the meeting with an impressive list of things we needed to accomplish, with tight timelines and […]

Notes from Joe, January 2023

Notes from Joe Isn’t it Strange? by Joe Pugliese, President and CEO Last year we developed a five-year plan for the Alliance activities to meet the needs of our members and the patients they serve. We recently met to review our progress to date and reaffirm that our plans for 2023 targeted the key issues. […]

Notes from Joe, December 2022

Notes from Joe Looking Back on 2022 by Joe Pugliese, President and CEO Writing this at the end of 2022, on one hand it seems like the COVID situation is over, but maybe not, regardless it is clear that people here and around the world have had it with their leaders trying to impose controls […]

Notes from Joe, October 2022

Notes from Joe 340B Blues by Joe Pugliese, President and CEO Congress passed the Veterans Health Care Act that created the 340B Program in 1992 and if you are having trouble sleeping you may want wade through the link. The 340B Program has been controversial since its inception. Ironically covered entities were remarkably slow to […]

Notes from Joe, August 2022

Notes from Heidi and Joe Serving Members Where They Are by Joe Pugliese and Heidi Lane Dear Bleeding Disorders Community, The Alliance serves all our members wherever they may be. We also remain committed to helping them serve all of their patients. Last week, we received a note from a member announcing they would not […]

Notes from Joe, July 2022

Notes from Joe Access to the Best Care by Joe Pugliese, President and CEO The Hemophilia Alliance hosted one of the more extraordinary meetings held in the bleeding disorders community, June 20 and 21st in Chicago. The meeting was extraordinary for several reasons. First, we had sent out an invite to all members, the three […]

Notes from Joe, May/June 2022

Notes from Joe Hang in There by Joe Pugliese, President and CEO “We are delighted to announce that the Alliance Board voted to fund the WFH International Hemophilia Training Centre (IHTC) Fellowship Program for up to $100,000. IHTC is the driving force for establishing comprehensive, multidisciplinary care for bleeding disorders in countries with inadequate access. […]

Notes from Joe, April 2022

Notes from Joe Update on Strategic Planning by Joe Pugliese, President and CEO The Hemophilia Alliance board and staff meet for our annual but delayed strategic planning session a few weeks ago. The objective was to identify those critical things the Alliance needs to do to support our mission to ensure member Hemophilia Treatment Centers […]