Notes from Joe, December 2023
Notes from Joe Final Edition by Joe Pugliese, President and CEO Dear Bleeding Disorders Community, It has been, my wife, Karen and my privilege and pleasure to be part of this community since 1977. It is beyond remarkable how much this community has endured, evolved, and grown over this time. Since this is my final […]
Notes from Joe, November 2023
Notes from Joe by Joe Pugliese, President and CEO “The single biggest problem in communication is the illusion that it has taken place.” George Bernard Shaw The Alliance just completed a very successful Physician /Administrator meeting in CA. The program was well attended, with 31 business administrators and 27 physicians. The sessions were led by […]
Notes from Joe, October 2023
Notes from Joe Highlights from Hemophilia Alliance Fall Member Meeting by Joe Pugliese, President and CEO Our recent member meeting was held in San Antonio, TX from October 8th to the 10th. The big news was the announcement that Jeff Blake will be stepping into the role of President and CEO effective January 1, 2024. […]
Notes from Joe, September 2023
Notes from Joe New Hemophilia Alliance President & CEO Search Update by Joe Pugliese, President and CEO As announced here in June, the Hemophilia Alliance has been actively searching for a new President & CEO to lead the organization starting January 1, 2024. The Executive Committee of the Board and I are serving as the […]
Notes from Joe, August 2023
Notes from Joe Coming Together by Joe Pugliese, President and CEO The National Hemophilia Foundation’s, annual Bleeding Disorders Conference, (NHF, BDC) returned to pre-pandemic levels for crowds and interactions. Len Valentino, NHF President and CEO, and his team celebrated its 75th anniversary by introducing a NEW name and logo for the organization – National Bleeding […]
Notes from Joe, July 2023
Notes from Joe Gene Therapy is Here, Now What? by Joe Pugliese, President and CEO Since its inception in 1999, the Hemophilia Alliance has seen significant growth in the research and development of novel therapies for the treatment of patients with hemophilia, von Willebrand disease, and other related bleeding disorders. The first infusion of an […]
Notes from Joe, June 2023
Notes from Joe Going, Going …… Not so fast by Joe Pugliese, President and CEO I have been working with the Executive Committee of the Hemophilia Alliance Board for the last several months, planning for my retirement at the end of the year. (Letter from Board Chair) It is an odd feeling working on replacing […]
Notes from Joe, May 2023
Notes from Joe by Joe Pugliese, President and CEO The World Health Organization recently declared an end to the Covid pandemic, I think the same week there was a superspreader event at a 340B Grantee meeting in New Orleans. What is clear is everyone is done with the pandemic, although it is not necessarily done […]
Notes from Joe, April 2023
Notes from Joe Dateline: Orlando, Florida by Joe Pugliese, President and CEO Over the last two months HTRS, Coalition for Hemophilia B and the Hemophilia Federation of America all had their annual meetings at the Renaissance Sea World in Orlando, FL. I made two out of three meetings since I was in DC for NHF’s […]
Notes from Joe, March 2023
Notes from Joe Dateline: Washington DC by Joe Pugliese, President and CEO NHF Washington Days was live for the first time since 2020. Turnout was strong with over 400 people from the bleeding disorders community turning out to lobby our representatives to support the community, including some folks from team Alliance and several people from […]