June 2024 Newsletter
In this Issue… Jeff Weighs In Administration and Operations Team Update · Don’t Miss Out! Navigating Patient Assistance and Copay Assistance Schemes Webinar · Re-cap of the 1st Annual Hemophilia Alliance Physical Therapy Conference · Upcoming Meeting Schedules Advocacy and Legal Update · New Research on 340B Program Spending Highlights Differences Among Covered Entities · […]
Jeff Weighs In, June 2024
Jeff Weighs In by Jeff Blake, President and CEO Also in this Issue… Administration and Operations Team Update · Don’t Miss Out! Navigating Patient Assistance and Copay Assistance Schemes Webinar · Re-cap of the 1st Annual Hemophilia Alliance Physical Therapy Conference · Upcoming Meeting Schedules Advocacy and Legal Update · New Research on 340B Program […]
Alliance Update, June 2024
Administration and Operations Team Update Don’t Miss Out! Navigating Patient Assistance and Copay Assistance Schemes Webinar The Hemophilia Alliance will be presenting a special webinar on understanding the difference between Copay Accumulators, Copay Maximizers, and Alternative Funding Programs. This webinar will be held on July 11 at 1:00pm EST. Click here to register. In this […]
Advocacy Update, June 2024
Advocacy and Legal Update New Research on 340B Program Spending Highlights Differences Among Covered Entities by Elizabeth ‘Issie’ Karan, Legal Counsel In a presentation at the 13th Annual Conference of the American Society of Health Economists, Congressional Budget Office (CBO) analysts presented findings from their analysis of data from the Health Resources and Services Administration […]
MCR Update, June 2024
Member and Community Relations Team Update MCR’s In the Community – MCR Team The Member and Community Relations (MCR) Team is comprised of Angela Blue, Jeff Amond, Karen Bowe-Hause, Mark Plencner, Zack Duffy, Roland Lamy, George Oestreich and Kollet Koulianos. Jennifer Borrillo, Senior Vice President of Member and Community Relations, leads the team. As you […]
Notes from the Community, June 2024
Notes from the Community VWD Connect Foundation Annual Conference in July: REGISTRATION STILL AVAILABLE! VWD Connect Foundation (VCF) will be holding the 8th Annual National Type 3/Severe Von Willebrand Disease Conference in West Palm Beach, Florida on July 19-22, 2024. The conference provides a four-day patient education conference for Type 3 and severe VWD patients, […]
May 2024 Newsletter
In this Issue… Jeff Weighs In Marketing and Operations Team Update · Spring Is In The Air · Upcoming Webinar and Meeting Schedules Advocacy and Legal Update · Hill Day Alumni’s Comic Book, “What is Factor 8?”, Featured on the News Member and Community Relations Update · HANS Agreement with Emerging Therapy Solutions (ETS) for […]
Jeff Weighs In, May 2024
Jeff Weighs In by Jeff Blake, President and CEO Also in this Issue… Marketing and Operations Team Update · Spring Is In The Air · Upcoming Webinar and Meeting Schedules Advocacy and Legal Update · Hill Day Alumni’s Comic Book, “What is Factor 8?”, Featured on the News Member and Community Relations Update · HANS […]
Alliance Update, May 2024
Marketing and Operations Team Update Spring Is In The Air by Marketing & Operations Team Last month, our annual Spring Members Meeting and Hill Day in Washington D.C. brought together members from across the nation for a series of productive discussions, informative presentations, and successful advocacy efforts. The event was marked by beautiful weather, engaging […]
Advocacy Update, May 2024
Advocacy and Legal Update Hill Day Alumni’s Comic Book, “What is Factor 8?”, Featured on the News by Elizabeth ‘Issie’ Karan, Legal Counsel Earlier this year, the Cordes Family participated in the Hemophilia Alliance’s Hill Day with their Hemophilia Treatment Center, Center for Bleeding and Clotting Disorders at Children’s Minnesota, in Minneapolis and now have […]