Legal Update, July 2023
Legal Update Lawsuits on Implementation of Medicare Drug Pricing Negotiation by Elizabeth “Issie” Karan, Hemophilia Alliance Legal Counsel In recent weeks, pharmaceutical manufacturers, including Merk, Bristol-Myers Squibb, and PhRMA, and the Chamber of Commerce have filed a slew of lawsuits challenging the Medicare Drug Price Negotiation Program authorized by the Inflation Reduction Act. Merck argued […]
June 2023 Newsletter
In this Issue… Notes from Joe · Going, Going …… Not so fast Notes from the Community · UC San Diego HTC Sponsors Course on Musculoskeletal Ultrasound · Reminder: The 4th Annual Innovation Grant Alliance Update · New Product Guide Available · New HTC Staff Meeting in NYC Payer Update · State Medicaid Redetermination in […]
Notes from Joe, June 2023
Notes from Joe Going, Going …… Not so fast by Joe Pugliese, President and CEO I have been working with the Executive Committee of the Hemophilia Alliance Board for the last several months, planning for my retirement at the end of the year. (Letter from Board Chair) It is an odd feeling working on replacing […]
Notes from the Community, June 2023
Notes from the Community UC San Diego HTC Sponsors Course on Musculoskeletal Ultrasound by Marlene Zepeda, UC San Diego The UC San Diego Hemophilia and Thrombosis Treatment Center is offering a three-day course on musculoskeletal ultrasound (MSKUS) and joint injection. The course is free to providers connected with HTCs and CME credits will be earned […]
Alliance Update, June 2023
Alliance Update New Product Guide Available by Theresa Parker, Administrator The Hemophilia Alliance team recently worked with Dr. Stacy Croteau to update our product guide for the Bleeding Disorders community. This year, we are excited to be offering not only printed product guides, but our very own Kiet Huynh has built an online version that […]
Payer Update, June 2023
Payer Update State Medicaid Redetermination in Process NOW by Angela Blue, Director Member & Community Relations Many HTC patients may be at risk of losing coverage, or having their Medicaid coverage mistakenly terminated, even if they have been covered by Medicaid for many years. The end of the COVID-19 Public Health Emergency (PHE) ushered in […]
May 2023 Newsletter
In this Issue… Notes from Joe Notes from the Community · Announcing: The 4th Annual Innovation Grant · HTC DSCSA Update · Not Your Ordinary Mascot! · VWD Connect Foundation July Conference – Patient Registration Still Available! Alliance Board Update · New Board Members Washington Update · COVID-19 Public Health Emergency Ends – Impact on […]
Notes from Joe, May 2023
Notes from Joe by Joe Pugliese, President and CEO The World Health Organization recently declared an end to the Covid pandemic, I think the same week there was a superspreader event at a 340B Grantee meeting in New Orleans. What is clear is everyone is done with the pandemic, although it is not necessarily done […]
Notes from the Community, May 2023
Notes from the Community Announcing: The 4th Annual Innovation Grant The Hemophilia Alliance Foundation is excited to offer its 4th annual funding opportunity for the Innovation Grant. This funding will allow an organization to fund a larger-scope project than what they are able to do with current HAF smaller grants. This is a one-year grant […]
Alliance Board Update, May 2023
Allilance Board Update New Board Members by Becky Burns, Vice Chair, Hemophilia Alliance Board The mission of the Hemophilia Alliance is to work “to ensure member Hemophilia Treatment Centers have the expertise, resources and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders”. Per the Hemophilia Alliance […]