2023 Fall Members Meeting Presentations Are Now Available for Download
Presentations can be downloaded here.
September 2023 Newsletter
In this Issue… Notes from Joe · New Hemophilia Alliance President & CEO Search Update · Partners Physician Academy – Second Annual Meeting held in Carmel Indiana on September 18, 2023 Advocacy Update · What’s happening in Congress? Payer Update · In Good Times and in Trying Times Notes from the Community · Alliance Sponsors […]
Notes from Joe, September 2023
Notes from Joe New Hemophilia Alliance President & CEO Search Update by Joe Pugliese, President and CEO As announced here in June, the Hemophilia Alliance has been actively searching for a new President & CEO to lead the organization starting January 1, 2024. The Executive Committee of the Board and I are serving as the […]
Washington Update, September 2023
Advocacy Update What’s happening in Congress? by Artemis Policy Group, Hemophilia Alliance Advocacy Consultants Congress returned to Washington after Labor Day with a jam-packed schedule for fall. Top of mind for everyone is the September 30th deadline to fund the federal government by passing all 12 appropriations bills for fiscal year (FY) 2024. If lawmakers […]
Payer Update, September 2023
Payer Update In Good Times and in Trying Times by Jeff Amond, Director Member & Community Relations I was reminiscing a few weeks ago about my 6-year work anniversary with the Hemophilia Alliance and for whatever reason I started thinking about how my work on the Member and Community Relations Team was like a marriage. […]
Notes from the Community, September 2023
Notes from the Community Alliance Sponsors Reception for National Youth Leadership Institute (NYLI) by Karen Bowe-Hause, Director Member & Community Relations The Hemophilia Alliance was pleased to sponsor the NYLI reception at the Bleeding Disorders Conference in August. The speakers at the event were invited by the Hemophilia Alliance and represented a variety of clinical […]
Alliance Update, September 2023
Alliance Update Did You Know… by Marketing & Operations Team As a benefit for being a Member of Hemophilia Alliance, you can request for a login of your own to (1) have the ability to register for our meetings and webinars (2) be on our mailing lists for meeting/event updates and monthly newsletters, (3) access […]
August 2023 Newsletter
In this Issue… Notes from Joe · Coming Together Washington Update · Congress Seeks Input on 340B Policies and Drug Shortages Legal Update · Detrimental Impact of Medicaid Unwinding Notes from the Community · Calling All Pharmacists – Do You Have Your Global Location Number? · HTC Challenge & Unite for Bleeding Disorders Walk program […]
Notes from Joe, August 2023
Notes from Joe Coming Together by Joe Pugliese, President and CEO The National Hemophilia Foundation’s, annual Bleeding Disorders Conference, (NHF, BDC) returned to pre-pandemic levels for crowds and interactions. Len Valentino, NHF President and CEO, and his team celebrated its 75th anniversary by introducing a NEW name and logo for the organization – National Bleeding […]
Washington Update, August 2023
Washington Update Congress Seeks Input on 340B Policies and Drug Shortages by Ellen Riker, Hemophilia Alliance Advocacy Consultant Senate RFI on 340B – Last month we reported on a Request for Information (RFI), issued by a bipartisan group of Senators, including Senators Tammy Baldwin (D-WI), Shelley Moore Capito (R-WV), Ben Cardin (D-MD), Jerry Moran (R-Ks), […]