Washington Update, May/June 2022
Washington Update Alliance Advocacy Update by Johanna Gray, Advocacy Consultant The Alliance advocates throughout the year on behalf of HTCs and their patients, and I’m pleased to share two recent comment letters that we have done as an example. Policymakers in Washington and in states across the country have been focused on pharmacy benefit managers […]
Legal Update, May/June 2022
Legal Update HTCs and Chapters: Partners in Education and Outreach by Elizabeth “Issie” Karan, Legal Counsel Hemophilia Treatment Centers (HTCs) ask the Hemophilia Alliance how they can support local chapters. As with all grants management questions, the way the support is structured matters. Below we review relevant guidance and provide suggestions for compliance. Education and […]
Notes from Joe, May/June 2022
Notes from Joe Hang in There by Joe Pugliese, President and CEO “We are delighted to announce that the Alliance Board voted to fund the WFH International Hemophilia Training Centre (IHTC) Fellowship Program for up to $100,000. IHTC is the driving force for establishing comprehensive, multidisciplinary care for bleeding disorders in countries with inadequate access. […]
Payer Update, May/June 2022
Payer Update Payer Team Update The last few years has been very busy for the Payer Team. We have accomplished a lot, but there is so much more that we can do. Below is a summary of the results of bringing business back to HTC pharmacy programs since 2018. Total new units 1/1/2018 – 4/30/2022 […]
Alliance Board Update, May/June 2022
Allilance Board Update New Board Members by Eric Gray, Vice Chair The mission of the Hemophilia Alliance is to work “to ensure member Hemophilia Treatment Centers have the expertise, resources and public support to sustain their integrated clinical and pharmacy services for individuals with bleeding and clotting disorders”. Per the Hemophilia Alliance by-laws, “The Board […]
May/June 2022 Newsletter
In this Issue… Notes from Joe · Hang in There Alliance Board Update · New Board Members Alliance Update · Harmony in Hemophilia · HTC Growth Initiative Legal Update · HTCs and Chapters: Partners in Education and Outreach Washington Update · Alliance Advocacy Update Payer Update Notes from the Community · Reminder: Announcing the Hemophilia […]
Notes from the Community, May/June 2022
Notes from the Community Reminder: Announcing the Hemophilia Alliance Foundation 3rd Annual Innovation Grant The Hemophilia Alliance Foundation (HAF) is excited to offer its 3rd-annual funding opportunity for the Innovation Grant, previously known as the “Large” Grant. This new name better reflects the intent of the grant and the opportunity it provides. This funding will […]
April 2022 Newsletter
In this Issue… Notes from Joe · Update on Alliance Strategic Planning Alliance Member Highlight · Multidisciplinary Care in the Management of Heavy Menstrual Bleeding and Blood Disorders Legal Update · The Do’s and Don’ts of Contract Pharmacies in 340B Discount Drug Program for HTCs Washington Update · Preparing for the End of the COVID-19 […]
Notes from Joe, April 2022
Notes from Joe Update on Strategic Planning by Joe Pugliese, President and CEO The Hemophilia Alliance board and staff meet for our annual but delayed strategic planning session a few weeks ago. The objective was to identify those critical things the Alliance needs to do to support our mission to ensure member Hemophilia Treatment Centers […]
Alliance Update, April 2022
Alliance Member Highlight Note from the Editor: We plan to start featuring one Alliance member each month, who will write about an innovative program or strategy they are using. Read on for an article about an innovative program out of the University of Colorado to provide a clinic for people who experience heavy menstrual bleeding. […]