Alliance Board Update, November 2022
Allilance Board Update Alliance Seeking Board Nominations by Eric Gray, CPA, Vice Chair, Hemophilia Alliance Board The Hemophilia Alliance Board Nominating Committee is seeking applicants or suggested nominations to fill two vacancies on the board of directors, with the term beginning January 2023. For consideration by the nominating committee, applicants are to submit a letter […]
Alliance Update, November 2022
Alliance Update HTC Wall of Walkers 2022 Update by Karen Bowe-Hause, Director Community Relations With the goal of encouraging HTC participation in the NHF Unite Walk program, the Hemophilia Alliance is once again supporting the program with the HTC Wall of Walkers campaign. As a reminder, as a member HTC of the Hemophilia Alliance, all […]
Washington Update, November 2022
Washington Update Update on the 2022 Midterm Elections by Johanna Gray, Ellen Riker and Issie Karan, Advocacy Consultants and Legal Counsel Historically, midterm elections have proved difficult for the political party in power. Coming into the 2022 elections, Democrats occupied the White House, narrowly controlled the House of Representatives, and effectively controlled the evenly-split Senate […]
Payer Update, November 2022
Payer Update Alternative Funding – an increasing concern by Jeff Blake, Senior Vice President Payer Relations We have heard from several member Hemophilia Treatment Centers (HTCs) about a concerning trend with self-insured employer sponsored health plans. This trend named Alternative Funding Model, excludes high-cost drugs specialty drugs from health insurance coverage and redirects access for […]
Notes from the Community, November 2022
Notes from the Community Hemophilia Alliance Foundation: Announcing Project and Patient Assistance Grants! Starting December 1st applications will be available on-line for the Hemophilia Alliance Foundation 2023 Project and Patient Assistance Grants. Since 2009, the Alliance Foundation has awarded over $4 million in grants to help 140+ chapters, treatment centers, and national community organizations serving […]
October 2022 Newsletter
In this Issue… Notes from Joe · 340B Blues Alliance Update · Meet Jennifer Anders! · Finding Talent Within the Bleeding Disorders Community! · Update re: Re-Accreditation of Gene Therapy Modules Developed by Partners Legal Update · How to Compliantly Increase Visibility of HTCs and the Comprehensive Care Model Washington Update · Webinar on Implementation […]
Notes from Joe, October 2022
Notes from Joe 340B Blues by Joe Pugliese, President and CEO Congress passed the Veterans Health Care Act that created the 340B Program in 1992 and if you are having trouble sleeping you may want wade through the link. The 340B Program has been controversial since its inception. Ironically covered entities were remarkably slow to […]
Alliance Update, October 2022
Alliance Update Meet Jennifer Anders!
Legal Update, October 2022
Legal Update How to Compliantly Increase Visibility of HTCs and the Comprehensive Care Model by Elizabeth “Issie” Karan, Legal Counsel Recently, several Hemophilia Treatment Centers (HTCs) have inquired about the rules and any limitations on marketing their programs. As described further below, these activities can be vital to HTC operations and have support in programmatic […]
Washington Update, October 2022
Washington Update Webinar on Implementation of the Hemophilia Skilled Nursing Facility Access Act Available by Ellen Riker, Advocacy Consultant On October 18, the Hemophilia Alliance with the National Hemophilia Foundation hosted a webinar for HTCs on the implementation of the new Medicare coverage policy allowing for separate payment for bleeding disorder treatments for patients in […]