March 2023 Newsletter
In this Issue… Notes from Joe · Dateline: Washington, DC · Product Update Washington Update · Register for the Hemophilia Alliance Hill Day this June! Alliance Board Update · Alliance Seeking Board Nominations Alliance Update · The Alliance Upcoming Events Webpage – A New Look & Feel Payer Update · HANS PPO Agreement 42 signed, […]
Notes from Joe, March 2023
Notes from Joe Dateline: Washington DC by Joe Pugliese, President and CEO NHF Washington Days was live for the first time since 2020. Turnout was strong with over 400 people from the bleeding disorders community turning out to lobby our representatives to support the community, including some folks from team Alliance and several people from […]
Washington Update, March 2023
Washington Update Register for the Hemophilia Alliance Hill Day this June! by Johanna Gray, Advocacy Consultant
Alliance Board Update, March 2023
Allilance Board Update Alliance Seeking Board Nominations by Becky Burns, Vice Chair, Hemophilia Alliance Board The Hemophilia Alliance Board Nominating Committee is seeking applicants or suggested nominations to fill vacancies on the board of directors. For consideration by the nominating committee, applicants are to submit a letter of interest and resume or CV to becky@ilbcdi.org […]
Alliance Update, March 2023
Alliance Update The Alliance Upcoming Events Webpage – A New Look & Feel by Kiet Huynh, Manager of IT Solutions
Payer Update, March 2023
Payer Update HANS PPO Agreement 42 signed, 65 To Go by Jeff Blake, Senior Vice President Member & Community Relations We continue to promote HANS and our PPO Agreement to our member HTCs and the payer community. In addition, we’ve had several discussions with payers to let them know HANS is a solution for Gene […]
Notes from the Community, March 2023
Notes from the Community Update on Partners Physician Academy With the generous support of the Hemophilia Alliance and The Alliance Pharmacy, this 5-day training course will take place September 17-22, 2023, in Indianapolis, Indiana. It is open to both pediatric and adult medicine physicians. To see photos and testimonials from the 2022 Physician Academy, explore […]
February 2023 Newsletter
In this Issue… Notes from Joe · Stepping Up Our Game Alliance Update · Update on Alliance Meetings for 2023! · Pharmacist CE Conference 2023 Summary Legal Update · A New Era of Conundrums: Contracting with Related Pharmacies to Prepare for Gene Therapy Washington Update · HELP Copays Act Reintroduced Payer Update · Call the […]
Notes from Joe, February 2023
Notes from Joe Stepping Up Our Game by Joe Pugliese, President and CEO Last April the board and staff of the Hemophilia Alliance met to lay out a five-year strategic plan. When the smoke cleared, we came away from the meeting with an impressive list of things we needed to accomplish, with tight timelines and […]
Alliance Update, February 2023
Alliance Update Update on Alliance Meetings by Jennifer Anders, Manager of Data & Analytics The Alliance recently hosted our 2023 Spring Member Meeting in Nashville. We were excited to spend time and listen to great music with about 85 of our members, of which about 12 were experiencing their first Alliance meeting. We were greatly […]