Search
Close this search box.
Search
Close this search box.

Hemo Alliance Newsletters

Alliance Update, April 2023

Alliance Update

We Need Your Help: Look for the HTC Needs Assessment
by Theresa Parker, Administrator

As we continue to strive towards providing the best possible services and resources to our community, we are conducting a needs assessment for our member HTCs. The purpose of this assessment is to gain insight into the needs and expectations of our member HTCs and to identify areas where we can improve and better serve you. We value your input and feedback and we would like to encourage all member HTCs to participate in this process. We want to hear from you about what you think is important, what works well, what could be improved and most importantly if the services we provide are working for you. Your input would help us to identify priorities and make decisions about how to allocate our resources. We also want to make sure you are taking advantage of our relationships with the Hemophilia Alliance Foundation, The Alliance Pharmacy (TAP), and the Hemophilia Alliance Network Services (HANS).

The needs assessment will be delivered to your mailbox in May 2023. We would like to ask that you complete it and get it back to us as early in the month as possible so we can collate all the responses and have some information to share in the July 2023 newsletter.

Thank you for your ongoing support and involvement in our bleeding disorders community!

Also in this Issue…

Notes from Joe
· Dateline: Orlando, Florida

Washington Update
· Reminder: Register for the June Hemophilia Alliance Hill Day!

Legal Update
· 340B Contract Pharmacy Services Agreement: Some Rules and Many Pitfalls

Payer Update

Notes from the Community
· The Hemophilia Alliance Foundation Update: 2023 Project/Patient Assistance Grants
· NHF – 2023 Unite for Bleeding Disorders National Walk and the HTC Wall of Walkers Challenge
· Update on FAIR Time for Women
· Webinar Announcement from the Foundation for Women and Girls with Bleeding Disorders

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

NameEmailPhone
Jeff Blakejeff@hemoalliance.org317-657-5913
Jennifer Borrillo, MSW, LCSW, MBAborrillo@hemoalliance.org504-376-5282
Jeff Amondamond@hemoalliance.org608-206-3132
Jennifer Andersjennifer@hemoalliance.org954-218-8509
Angela Blue, MBAangela@hemoalliance.org651-308-3902
Karen Bowe-Hausekaren@hemoalliance.org717-571-0266
Zack Duffyzack@hemoalliance.org503-804-2581
Michael B. GlombMGlomb@ftlf.com202-466-8960
Johanna Gray, MPAjgray@artemispolicygroup.com703-304-8111
Kiet Huynhkiet@hemoalliance.org917-362-1382
Elizabeth Karanelizabeth@karanlegalgroup.com612-202-3240
Kollet Koulianos, MBAkollet@hemoalliance.org309-397-8431
Roland P. Lamy, Jr.roland@hemoalliance.org603-491-0853
Dr. George L. Oestreich, Pharm.D., MPAgeorge@gloetal.com573-230-7075
Theresa Parkertheresa@hemoalliance.org727-688-2568
Mark Plencnermark@hemoalliance.org701-318-2910
Ellen Rikereriker@artemispolicygroup.com202-257-6670