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Hemo Alliance Newsletters

Alliance Update, April 2020

Alliance Update

Social Work Planning Committee Member Needed
By Jeff Amond

The Hemophilia Alliance seeks to fill two vacancies on the Planning Committee for the Annual Linda Gammage Social Work Conference. Ideal candidates should be currently employed at a federally-supported HTC that is a member of the Hemophilia Alliance. This volunteer opportunity involves working collaboratively with other committee members to identify appropriate topics, recruit speakers and plan/evaluate programs. Committee members participate in conference calls and one in-person planning meeting per year, if needed. The role generally requires a commitment of about two hours per month. The term is three years. Interested individuals should submit their CV and a Letter of Interest to Jeff Amond at amond@hemoalliance.org by Friday May 8, 2020.
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2020 Meeting Schedule

  • Hill Day: More information to be announced
  • Fall Members Meeting: October 4th to 6th
  • New member meeting rescheduled November 2020

Also in this Issue…

Notes from Joe
· Fighting Back

Legal Update
· Helping Patients Impacted by COVID-19 through Chapters

Washington Update
· Medicare Home Health Benefit Changes during COVID to Assist Bleeding Disorder Patients

Payer Update
· Coronavirus Policy Changes and Medicaid

Notes from the Community
· Hemophilia Alliance Foundation Announces New “Large” Grant

Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

NameEmailPhone
Jeff Blakejeff@hemoalliance.org317-657-5913
Jennifer Borrillo, MSW, LCSW, MBAborrillo@hemoalliance.org504-376-5282
Jeff Amondamond@hemoalliance.org608-206-3132
Jennifer Andersjennifer@hemoalliance.org954-218-8509
Angela Blue, MBAangela@hemoalliance.org651-308-3902
Karen Bowe-Hausekaren@hemoalliance.org717-571-0266
Zack Duffyzack@hemoalliance.org503-804-2581
Michael B. GlombMGlomb@ftlf.com202-466-8960
Johanna Gray, MPAjgray@artemispolicygroup.com703-304-8111
Kiet Huynhkiet@hemoalliance.org917-362-1382
Elizabeth Karanelizabeth@karanlegalgroup.com612-202-3240
Kollet Koulianos, MBAkollet@hemoalliance.org309-397-8431
Roland P. Lamy, Jr.roland@hemoalliance.org603-491-0853
Dr. George L. Oestreich, Pharm.D., MPAgeorge@gloetal.com573-230-7075
Theresa Parkertheresa@hemoalliance.org727-688-2568
Mark Plencnermark@hemoalliance.org701-318-2910
Ellen Rikereriker@artemispolicygroup.com202-257-6670