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Hemo Alliance Newsletters

Alliance Update, April 2019

Alliance Update

Spring Into our Services
By Sean Singh

With our member meeting just around the corner we wanted to remind you of a few things.

We have recently moved. Please update our address to:
 

Hemophilia Alliance
20 Vine Street, #1227
Lansdale, PA 19446

We realize that things change. We ask that you please take a few minutes to update the contact information for the HTC team members. If your team has changed, please contact Audra as this helps all of us of be more efficient.

Electronic and digital communications continue to be scrutinized by filters and algorithms. Please remember to have hemoalliance.org white listed within your organizations email system to ensure that you receive our emails. Joe and I inform you of current and topical information and we want to make sure you get them. Please check with your IT departments to make sure that joe@hemoalliance.org and Sean@hemoalliance.org are specifically noted as senders you can receive email from.

The membership dues invoice have been emailed to the primary contact at your center. If you have not received your 2019 invoice, please contact Audra at audra@hemoalliance.org. Here is a list of some of the benefits of your membership. If there is something you need help with that is not on this list, please reach out to us as we continue to add to our expertise and services.

Team Alliance Expertise

We give you a national voice in Washington, DC and the expertise of the Alliance consultants which include:

  • Legal and regulatory compliance advice
  • Payer contracting and relations expertise
  • Reimbursement expertise
  • Management experience
  • Advocate in Washington, DC
  • Development of HTC Policies and Procedures
  • Updates via Webinars
  • Access to our website with large libraries of information
  • Newsletter
  • Group Purchasing Services discounts
  • Member meetings
  • Assistance in setting up a pharmacy program
  • Participation in Federal Regulatory Process
  • State Medicaid policy and billing expertise
  • Customized outreach materials
  • Bleeding disorder therapies
  • Nursing and lab services

Group Purchasing Organization Contracts

The Alliance currently has 106 members. Ninety-six of our members are enrolled participating members in the Group Purchasing Organization (GPO). There is no separate fee to be a participating member of the GPO in order to enjoy the benefits and reduced pricing. There is no obligation to purchase products and services under this agreement, but once enrolled you are able to utilize our agreement as you see fit, subject to requirements and restrictions of the individual contracts. In just the past 12 months, GPO participating members have saved in excess of $100,000,000, by taking advantage of the contracts we have available through the GPO. The average savings per participating center was $943,000.

Alliance Benefits the Bleeding Disorders Community

The Alliance gives back to the hemophilia community. The Alliance granted $12,000,000 to the community from 2009-2019. The funding has expanded exponentially since a very modest donation to the National Hemophilia Foundation of $25,000 in 2009. The grants come in three big buckets. First, the Alliance gives a block grant to the Hemophilia Alliance Foundation, an independent nonprofit organization, which granted $731,000 in 2019. Second, the Alliance provides funding to ATHN, which in turn supports ATHN data managers at HTCs across the country. This allows them in their efforts to gather much-needed health data. Finally, the Alliance provides direct funding to national patient organizations. We work closely with National Hemophilia Foundation’s advocacy team and we were pleased to be the inaugural sponsor of the HFA’s (Hemophilia Federation of America) recently-announced Smithsonian initiative that will house the hemophilia history.

We work for YOU our MEMBERS.

Also in this Issue…

Notes from Joe
· Three Reasons to Support the HTC Network

Legal Update
· Roadmap for Compliant Expenditures of Federal Funds: Highway to the Danger Zone!

Payer Update
· Payer Update – It’s All About the Data!

Notes from the Community
· HFA Announced Archive Project with Smithsonian Institution
· Seeking Director of Community Relations


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Team Alliance Contact Information

We work for you! Please don’t hesitate to contact any of us with any questions or concerns:

NameEmailPhone
Jeff Blakejeff@hemoalliance.org317-657-5913
Jennifer Borrillo, MSW, LCSW, MBAborrillo@hemoalliance.org504-376-5282
Jeff Amondamond@hemoalliance.org608-206-3132
Jennifer Andersjennifer@hemoalliance.org954-218-8509
Angela Blue, MBAangela@hemoalliance.org651-308-3902
Karen Bowe-Hausekaren@hemoalliance.org717-571-0266
Zack Duffyzack@hemoalliance.org503-804-2581
Michael B. GlombMGlomb@ftlf.com202-466-8960
Johanna Gray, MPAjgray@artemispolicygroup.com703-304-8111
Kiet Huynhkiet@hemoalliance.org917-362-1382
Elizabeth Karanelizabeth@karanlegalgroup.com612-202-3240
Kollet Koulianos, MBAkollet@hemoalliance.org309-397-8431
Roland P. Lamy, Jr.roland@hemoalliance.org603-491-0853
Dr. George L. Oestreich, Pharm.D., MPAgeorge@gloetal.com573-230-7075
Theresa Parkertheresa@hemoalliance.org727-688-2568
Mark Plencnermark@hemoalliance.org701-318-2910
Ellen Rikereriker@artemispolicygroup.com202-257-6670